Stories from our CF community



Max, aged six from Southland

We think it’s important to live your life as normally as possible and don’t let CF hold you back. As soon as you start putting them in a bubble that’s when things can change.
Max 2018 006

Tayler, aged 11 from Auckland

My hopes for Tayler are the same as they are for my other children. I want them all to live long, happy and healthy lives, and to have a family of their own one day.
230 CF

Alana, adult from Christchurch

In just five months I declined very quickly. My lung function dropped by 20 percent, I was on oxygen 24/7, I weighed just 42kgs and my hair was falling out.
Alana adult with CF at Lake Louise v2

Tailen, aged 15 months from the Waikato

It has been an emotional rollercoaster. It’s not just the diagnosis, it’s the level of care involved in caring for Tailen – the physiotherapy and nebuliser treatments every day, not to mention the ongoing hospital admissions.
Tailen CF 2018 with Mickey v2

Hayden, aged 17 from Auckland

At four weeks he was admitted to hospital, struggling to breathe. Part of Hayden’s lung collapsed and he was excreting so much salt it was crystallising on his forehead. We were in hospital for two weeks before CF was confirmed.
Hayden 6