It has been an emotional rollercoaster. It’s not just the diagnosis, it’s the level of care involved in caring for Tailen – the physiotherapy and nebuliser treatments every day, not to mention the ongoing hospital admissions.
At four weeks he was admitted to hospital, struggling to breathe. Part of Hayden’s lung collapsed and he was excreting so much salt it was crystallising on his forehead. We were in hospital for two weeks before CF was confirmed.