We offer free, balanced information on all aspects of life with CF in our information resources and on our website. Along with the medical advice you receive from your CF team, our information can help you make informed decisions about your lifestyle, treatment and care, however you’re affected by cystic fibrosis.

If you'd like a hard copy of any of our resources please email us at or call 0800 651 122. We welcome feedback on any of our resources or if you have an idea of a resource we should include on our website.



We produce a range of newsletters delivered straight to your home address or inbox. It’s a great way of keeping up to date with cystic fibrosis news and what we are doing to support the CF community.

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We have a range of informative guides developed with the help of the CF community. They cover a number of topics, ranging from issues surrounding diagnosis, starting school, and information for friends and family.

View guides
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PORT CF data registry

View the PORT CF data registry reports.

View registry
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Fact sheets

Fact sheets offer in-depth information for a range of CF topics and are easy to read, print out and keep. They include topics such as lung transplant, cross-infection, travel and nutrition. 

View fact sheets
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A collection of useful and informative videos ranging from personal experiences with cystic fibrosis, support for using medical equipment, and information about cystic fibrosis.

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Resources for parents

Find up-to-date resources and links to parenting websites for parents and caregivers of children with CF. This section includes guidelines for nebulising antibiotics, hypertonic saline and more.


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Clinical guidelines

Find resources related to clinical care of children and adults with cystic fibrosis in New Zealand.

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International cystic fibrosis organisations

Visit organisations around the world dedicated to improving the lives of people with cystic fibrosis.

View organisations
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