Resources

We have a range of resources available for our CF community and anyone who would like to know more about cystic fibrosis. If you'd like to provide feedback about any of our resources or know of a resource we should include, please email us at info@cfnz.org.nz.

 

Newsletters

We produce a range of newsletters delivered straight to your home address or inbox. It’s a great way of keeping up to date with cystic fibrosis news and what we are doing to support the CF community.

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Guides

We have a range of informative guides developed with the help of the CF community. They cover a number of topics, ranging from issues surrounding diagnosis, starting school, and information for friends and family.

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Reports

View Cystic Fibrosis New Zealand annual reports and PORT CF data registry reports.

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Fact sheets

Fact sheets offer in-depth information for a range of CF topics and are easy to read, print out and keep. They include topics such as lung transplant, cross-infection, travel and nutrition. 

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Videos

A collection of useful and informative videos ranging from personal experiences with cystic fibrosis, support for using medical equipment, and information about cystic fibrosis.

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Parenting resources

Many of the issues parents face when raising a child with CF are normal, everyday challenges all parents face. In this section is a range of general parenting resources and websites.

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Clinical guidelines

Find up-to-date resources related to clinical care, including guidelines for nebulising antibiotics and hypertonic saline and standards of care for CF in New Zealand.

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International cystic fibrosis organisations

Visit organisations around the world dedicated to improving the lives of people with cystic fibrosis.

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