Resources

We have a range of resources available for our CF community and anyone who would like to know more about cystic fibrosis. If you'd like a hard copy of any of our resources please email us at info@cfnz.org.nz or call 0800 651 122. We welcome feedback on any of our resources or if you have an idea of a resource we should include on our website.

 

Newsletters

We produce a range of newsletters delivered straight to your home address or inbox. It’s a great way of keeping up to date with cystic fibrosis news and what we are doing to support the CF community.

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Guides

We have a range of informative guides developed with the help of the CF community. They cover a number of topics, ranging from issues surrounding diagnosis, starting school, and information for friends and family.

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PORT CF data registry

View the PORT CF data registry reports.

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Fact sheets

Fact sheets offer in-depth information for a range of CF topics and are easy to read, print out and keep. They include topics such as lung transplant, cross-infection, travel and nutrition. 

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Videos

A collection of useful and informative videos ranging from personal experiences with cystic fibrosis, support for using medical equipment, and information about cystic fibrosis.

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Resources for parents

Find up-to-date resources and links to parenting websites for parents and caregivers of children with CF. This section includes guidelines for nebulising antibiotics, hypertonic saline and more.

 

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Clinical guidelines

Find resources related to clinical care of children and adults with cystic fibrosis in New Zealand.

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International cystic fibrosis organisations

Visit organisations around the world dedicated to improving the lives of people with cystic fibrosis.

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