Stories from our CF community



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Ashley, adult from the Bay of Plenty

Then I got a phone call from my CF nurse She told me I had been approved for the Managed Access Programme for Trikafta. Two days later I took my first dose.

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Nora, aged 7 from Wellington

We were so relieved that it was CF, we were worried that she wouldn't recover from her chest infection and collapsed lung. CF meant that she could recover and even be healthy with the right treatment.

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James, adult from the Waikato

I want nothing more than to grow old with my wife, and my beautiful daughter Jessie.

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Madison, aged 10 from Wellington

It is a constant juggling act between trying to “normalise” Madison’s life and keep her safe and well.

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Max, aged six from Southland

We think it's important to live your life as normally as possible and don't let CF hold you back. As soon as you start putting them in a bubble that's when things can change.

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Amber, aged 13 from Hawke's Bay

When Amber was a baby 13 years ago, the CF nurse told me that people with CF are special. She said she didn’t know if it was due to what they went through or whether it was nature’s way of balancing things out.

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Hayden, aged 17 from Auckland

Pip Stocking's son Hayden has CF. Now Pip is on a mission to help raise awareness of CF among Maori.

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Tailen, aged 15 months from the Waikato

Tailen was born much smaller than my other 3 children, he didn't feed properly and I was forever changing his nappy.

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Tayler, aged 11 from Auckland

My hopes for Tayler are the same as they are for my other children. I want them to live long, happy and healthy lives.

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Alana, adult from Christchurch

My life hasn't taken the usual path but I do live it to the full. I like to think anything is possible.

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