More people with cystic fibrosis (CF) are in employment than ever before. Choosing a career and finding a job are important life choices and while having CF should not limit your choices, there are some important points to consider.
Will your employers be sensitive to your needs? Is it a safe working environment? And do I need to tell a prospective employer that I have CF? These might be just some of the questions running through your mind.
People with CF are in all sorts of different occupations in New Zealand. We have advertising execs, accountants, early childhood educators, business owners, teachers, counsellors, office workers, builders, mechanics, tattoo artists, truck drivers and more.
You can check with your CF field worker or CF team about whether a specific job would be suitable, and they can write a letter about your health and ability to work, if you’d like this.
It’s up to you to decide who you want to share information about your health with. Some people applying for jobs choose not to disclose a health condition with prospective employers, others may choose to do so and in some cases with positive results.
There are some situations where people have a legal responsibility to reveal a health disorder – and that’s when a health condition could put you or someone else at risk (mentally or physically), or when it could impact on your ability to do the job required. Some corporate employment contracts also require a medical to be completed prior to starting work, regardless of the person's health status.
Regardless of whether or not you disclose CF during the job interview process, many people believe it can be helpful for employers to be aware of a health condition – it can mean they will be more flexible with working hours and understanding of time off for hospital appointments or ill-health.
It’s a good idea to consider cross infection risks and the possibility of others with cystic fibrosis working or visiting the workplace. You should also avoid exposure to possible sources of infection such as hay and compost, and other sources of the fungus Aspergillus and bacteria Pseudomonas. In some cases measures can be introduced to avoid these risks.
Employers are required (under the Human Rights Act) to introduce reasonable changes to the work or the workplace to meet the needs of someone with a disability. This can include ways of minimising cross infection risks, having a clean and safe place for keeping medications (such as a fridge), being able to work from home at times, have flexible hours, and time off for hospital appointments.
Employers could be eligible for government subsidies for employing someone with a disability such as wage subsidies or grants to help them make modifications to the workplace.
Remember that it’s also important that a job or workplace also suits you, and it’s somewhere that you feel comfortable to work. Don’t give up if it takes time to find the right fit for you.
If you do experience discrimination on the basis of health status, or just want information about your rights, you can seek free, specialist advice by contacting Citizens Advice Bureau. You can also seek legal advice and/or make a complaint to the Human Rights Commission.
Work and Income can also offer advice for helping people find work and also assistance for businesses employing someone with a disability.
“I make sure my weekends are very relaxed or at least one day is for sleeping. I also try to have a back/shoulder massage once a week (focused on my lungs) and I find that really helps with lung pain from working and sitting at a computer all the time.”
“First of all (and MOST important) - do something you love. Life is too short to be stuck in a job you don't enjoy. I always struggled with energy levels, but I love going to work - it wears me out but it is worth it!”
“Get up from your desk every hour or so to walk around, go to the bathroom or have a drink of water. Being deskbound isn't terribly good for anybody, let alone someone with CF. Sometimes when I head to the bathroom, I do some airway clearance exercises while there, so I can have privacy when I cough etc.”
“I work almost full time – four days a week. I find that having my nebuliser in the car on the way to work allowed me to sleep in a little later in the mornings. This is imperative to my day as I have to try and fit three nebulisers in and when you have CF, an extra 20 mins of sleep in the morning really makes a difference. This is also a God send as I have to travel nearly an hour every morning so every saved minute counts!”
Remember that our CF field workers are here to help you with this phase of your life. They can help you identify whether a specific job would be suitable, talk through your concerns and provide support for any issues.Get in touch with your CF field worker