Over 500 Kiwis

Cystic fibrosis (CF) is New Zealand's most common life-limiting genetic condition. It mainly affects the lungs and pancreas, but over time affects other organs too. There are over 500 children and adults living with CF in New Zealand.

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A brighter future

Cystic Fibrosis New Zealand is the only charity dedicated to supporting and improving the quality of life for people with CF and their families. Established in 1968 as a volunteer support group for parents with a newly diagnosed child, we dedicate ourselves to shaping a brighter future for everyone with cystic fibrosis.

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Making a difference with your support

“My social worker Sue is a listening ear when I am worried about what the future might hold. She talks through my concerns about declining health and also my hopes and worries about a lung transplant. She’s my advocate and support person. My life wouldn’t be the same without her”.

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Like to know more?

We have a range of resources including guides, fact sheets and newsletters for our CF community and people who would like to know more about CF.

Our resources

Living with cystic fibrosis

Hear from adults and children in New Zealand living with cystic fibrosis.

Read their stories

What's on?

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Check out our upcoming events and
campaigns, and get involved.

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Thanks to our partners

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