Cystic fibrosis (CF) is New Zealand's most common life-limiting genetic condition. It mainly affects the lungs and pancreas, but over time affects other organs too. There are over 500 children and adults living with CF in New Zealand.
Cystic Fibrosis New Zealand is the only charity dedicated to supporting and improving the quality of life for people with CF and their families. Established in 1968 as a volunteer support group for parents with a newly diagnosed child, we dedicate ourselves to shaping a brighter future for everyone with cystic fibrosis.Find out how we can help
“My social worker Sue is a listening ear when I am worried about what the future might hold. She talks through my concerns about declining health and also my hopes and worries about a lung transplant. She’s my advocate and support person. My life wouldn’t be the same without her”.Donate today
The outlook for children with CF was bleak – the majority would die before the age of 5. There was little support for parents in New Zealand. This led to the establishment of a support group of 27 people in Wellington and then the formation of Cystic Fibrosis New Zealand, which became a registered charity on 16 December 1968.
Thanks to new treatments, organ donation and more personalised care, life expectancy has risen to over 40 years in a number of countries around the world. Scientists are constantly working on new therapies and drugs that will continue to prolong life and hopefully lead to a cure.