"At Go-Kart motoring, I can go up to 100kms per hour. I like it when you are going to pass and you're up beside someone - you just wing it! My mum worries about me, she tells me I have no fear. I do sometimes. Not on the race track, but when I find it hard to breathe.
Having access to the latest treatments and medical equipment, as well as support from specially-trained health professionals, is critical to Tayler's race for life. Global advances and treatment breakthroughs have limited impact unless they can reach New Zealand.READ TAYLER'S STORY
Every dollar we raise accelerates our race to access advanced treatments for this devastating disorder that cuts lives short. It also means we can continue to fund CF research, advocate for better care, and grow our support services. Add laps to their lives by donating today.DONATE NOW
The outlook for children with CF was bleak – the majority would die before the age of 5. There was little support for parents in New Zealand. This led to the establishment of a support group of 27 people in Wellington and then the formation of Cystic Fibrosis New Zealand, which became a registered charity on 16 December 1968.
Thanks to new treatments, organ donation and more personalised care, life expectancy has risen to over 40 years in a number of countries around the world. Scientists are constantly working on new therapies and drugs that will continue to prolong life and hopefully lead to a cure.