We advocate on behalf of the CF community on issues that matter – access to medicines and equipment, better welfare assistance and equal care for all – and the more people join in, the louder our voice will be.

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CF field workers

Our regional field workers act as personal advocates for people with cystic fibrosis. They help them navigate multiple systems, including school, employment, welfare support, clinical care and any other issues that arise.

Get in touch with your field worker

Sharing stories

Your voice has the power to inspire action and help shape public policy. Telling your own personal stories in the media, website and on social media not only improves awareness of cystic fibrosis, it can promote change for the better. It’s always a good idea to reveal some information about yourself or family circumstances when writing or contacting MPs or government agencies. The emotional viewpoint can help give decision makers a true picture of what having CF is really like.

CFNZ can help to write your own letter. We also have a template letter for writing to MPs to improve access to rare medicines.

Template letter to MPs
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Better care

Cystic Fibrosis New Zealand is lobbying for progress in the following areas: