31 March 2022

We have been blown away by the amount of media coverage cystic fibrosis and Trikafta has received since Carmen’s petition for Trikafta was presented on Monday.

Huge thanks to every one of you who has shared your CF story with the media, we are very grateful. Our community has such a powerful voice and message, and the more people who hear about the undeniable need for access to Trikafta and the life-changing impact it will have on our Kiwis with CF, the better.

We’d also like to thank all the media who are firmly in our corner, ensuring we are being listened to.

Media coverage

Monday 28 March 2022

Watch Newshub’s piece from the petition presentation here

Read the Stuff article here

Scoop articles:

• Read the Cystic Fibrosis NZ media release here
• Read the Patient Voice Aotearoa press release here
• Read Te Pāti Māori press release here

TodayFM interviews:

• Listen to Rachel Smalley speak about CF and Trikafta here
• Listen to Rachel Smalley’s interview with Ed Lee here
• Listen to Lloyd Burr’s interview with Lisa Burns here

Tuesday 29 March 2022

TodayFM interviews:

• Listen to Rachel Smalley’s interview with Health Minister Andrew Little here
• Listen to Rachel Smalley’s interview with Lisa Williams (Director of Operations – Pharmac) here

Wednesday 30 March 2022

Watch Bella Powell’s interview on Breakfast here

Friday 1 April 2022

Listen to TodayFM's Rachel Smalley interview with Australian Minister of Health, Greg Hunt here

Petition live stream

In case you missed it, you can watch the petition presentation at any time, here.