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All Fundraising Advocacy Research Clinical care Community CFNZ
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1 Jul 2025
Advocacy

Provisional PTAC Recommendation for Alyftrek

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30 Apr 2025
Advocacy

Advocacy Update - April 2025

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20 Mar 2025
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Medsafe approval clears the way for expanded access to Trikafta for Kiwis aged 2 to 5 years old.

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19 Feb 2025
Advocacy

Advocacy Update - February 2025

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23 Jan 2025
Advocacy

Breakthrough for young Kiwis with cystic fibrosis: Pharmac recommends high priority for Trikafta funding for ages 2-5

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15 Oct 2024
Advocacy

Advocacy Update - October 2024

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The Advocacy Brief June 24 1
20 Aug 2024
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Advocacy update - August 2024

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The Advocacy Brief June 24 trikafta and kalydeco update
17 Jun 2024
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Trikafta and Expanded Access to Kalydeco Update

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17 Jun 2024
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Advocacy update - June 2024

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11 Jan 2024
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Advocacy Update - December 2023

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28 Aug 2023
Advocacy

You are one diagnosis from moving to Australia - #MyLifeMatters campaign launches

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7 Mar 2023
Advocacy

Trikafta - next steps for our community

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