CF families and their stories are making headlines across NZ
There has been loads of community stories and Trikafta advocacy circulating recently.
To make sure you don’t miss out, we’ve done a media wrap up of recent activity, so you don’t have to search. Click below for links to all coverage.
Butler-Hogg Family, Hughes Family and Rebekah in the Post - Hope for 'life-changing' cystic fibrosis medicine for toddler | The Post
Delaney Family, Hanna Meates in the Herald - https://www.nzherald.co.nz/nz/wellington/kiwi-family-moves-to-australia-to-get-cystic-fibrosis-drug-trikafta-for-daughter/3BCD53ESKRCW7JIZGMJ4V5JBY4/ -
Lisa’s interview with Ryan Bridge on Herald Now - https://www.youtube.com/watch?v=kAMwTXv-Gg8
Herald follow up article - https://www.nzherald.co.nz/nz/wellington/pharmac-minister-david-seymour-hopes-agency-will-make-right-decision-on-trikafta/5H7C7NNETNAX7H45CES5OUR7XM/ -
Herald Editorial - https://www.nzherald.co.nz/nz/trikafta-funding-gap-for-young-children-with-cystic-fibrosis-needs-filling-editorial/TPQ43B7GHJFBLAYKZ5T2UHKWIQ/