20 November 2018
The Rare Disorders Subcommittee has now met, though we don't expect to hear from the committee until the new year. While we wait we're thinking about next steps for the campaign so if you have any thoughts it would be great to hear from you. Please email Lisa with your ideas: firstname.lastname@example.org.
We'll keep you updated on any news, but for now we want to say a huge thank you to everyone who took the time to participate in the campaign, your efforts are much appreciated!