Giving a Future for CF v3
1 Apr
Fundraising

CF Awareness Month just around the corner

Cystic Fibrosis Month 1-31 May 2021

 

1 April 2021

CF Awareness Month is just around the corner, and it's a perfect time to get involved and make some noise about cystic fibrosis.

Last July Cystic Fibrosis NZ took the decision to align our annual awareness drive with our counterparts in Australia and America by moving CF Awareness Week to May.

We’ve always felt there are so many aspects to CF that it’s hard to pin it to just one week – so we’re taking over the whole of May!

This year we'll be focusing on four key themes;

  • Access to medications / campaign for Trikafta
  • Impact of CF on the body
  • Daily treatment of CF
  • Cross infection

 If you have any insights to share, photos, words, videos... on the above topic, please get in touch. 


Help advocate for CF

CF Month is a great time to advocate for CF – for better access to treatments, better understanding and awareness, and better support during the highs and the lows.

Tell your CF story
We want to hear what life is like for you now, the ups, the downs, and everything in-between! We’ll pitch your story to the media, and together we can educate the public, bust some misconceptions, and promote what YOU want to be raised about CF. Contact comms@cfnz.org.nz to find out more.


Use social media to spread the word
Add a frame to your profile picture, share a personal message or photo summarising your connection to CF, or simply repost a news article or interview. Using social media is a great way to raise awareness of CF.


Get involved with the campaign for Trikafta
We’re seriously hoping that Trikafta will be secured by May, and we can look back on this point and smile. But there’s a chance we’ll still be fighting – so CF Month is a great time to push the call for public funding of this important medicine. Visit cfnz.org.nz/trikafta for ideas.



Get involved with fundraising

It's also an important time to support Cystic Fibrosis NZ – the only charity dedicated to supporting and advocating for people with CF in New Zealand.

As a charitable organisation, we rely almost entirely on the generosity of the New Zealand public to provide services such as our fieldworkers, information guides, and welfare and emergency grants.

Here's five ways you can help us continue to be there for you!


Buy a CF Month Raffle ticket
Our 2021 raffle goes live 21 April, with some fantastic prizes to be won. Order a few booklets and entice your friends and family all in support of cystic fibrosis. Keep an eye out on our social media and website for updates.


Get sweating for CF
Jump on to sweat4cf.org.nz, create a free page, and make your sweat count! You can take on any challenge that breaks a sweat and get your friends and family to sponsor you.


Set up your own fundraiser
Get your thinking cap on – your own fundraiser can be as simple or as elaborate as you like. Think bake sales, quiz nights, lemonade stands, ugly jumper parties..! You can use a fundraising page such as Givealittle to easily raise money.


Get in on the street appeal – 28th and 29th May
Many of our regional branches coordinate local street appeals and other fundraising activities like sausage sizzles. Visit cfnz.org.nz/volunteer to sign up.


Sell chocky fish
You can’t go wrong with selling few chocolate fish. Sell them for a $1 each and over 50 cents go to support services. Contact admin@cfnz.org.nz to get started.