29 September 2021

This Saturday CFNZ Auckland Branch is hosting a Trikafta (and other CF modulator) focused Zui, and we would love all members of the CF community in NZ to join us!
 
When: Saturday 2 October
Time: 3-4pm
Where: Zoom – from your lounge, kitchen, back garden…
 
We will be hearing from the lovely Kirsty Parsons, Hawkes Bay based adult with CF. We are looking forward to learning about her experience participating in the original trial for Trikafta when she was living in the UK. She’ll also speak about the impact Trikafta has had on her life over the last few years.
 
Carmen and Chris Shanks from Trikafta for Kiwis will share the work they’ve done, and progress on the petition to get Trikafta publicly funded for Kiwis with CF.
 
We will also be joined by Christine Perrins, the current Acting Chief Executive of CFNZ. Christine has been volunteering her time for the last 18 months as our Advocacy Advisor, managing the Trikafta Campaign. She will share CFNZ’s progress in the advocacy space.
 
If you’d like to attend, please email CFNZ Auckland Branch Coordinator, Jo at auckadmin@cfnz.org.nz and she will send you the link for Saturday’s Advocacy Zui.

All welcome - hope to see you there!