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Newsletters

Cystic Fibrosis New Zealand produces two newsletters  our twice-yearly CF News magazine
(printed) and our monthly CF Panui (electronic).

Browse previous editions, or subscribe to receive either newsletters (or both!). If you've got a special event, would like to share your story or have something to shout about, please let us know. You might find yourself in our next newsletter!

CF News magazine

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CF News – Winter 2018

Nigel Latta in Christchurch, Dancing with the Stars win for CF, NZ Joins Global Liver Study, and Meet our CF Achievers.

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CF News – Summer 2018

Alana’s Adventures, CF on Shortland St, Top Scholars, Research News – Trends in NZ CF Care, Gene Editing in NZ, CF Adult News – “I was lucky to get on transplant list”.

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CF News – Winter 2017

Meet our CF Achievers, CF Surfers in Southland, Research News: 3D Printed Lungs? CF Adult News: CF at 63!

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CF News – Summer 2017

Cystic Sisters' TV reward, hunting for the perfect home, NZ research news, Branch News, new CFNZ staff members & CF Adult News

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CF News – Winter 2016

Surfing for CF, CF Achievers, Mark Ashford Scholarship, CF Conference report, Cystic Sisters' 65 days of good deeds & CF Adults travel the world.

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CF News – Summer 2016

Big move for Molly and family, CF Achievers, Mark Ashford Scholarship, battling the bugs, Justin's amazing transplant recovery

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CF News – Winter 2015

Hayden's California's wish is granted, CF Conference, Challenge Wanaka, work tips for Adults

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CF News – Summer 14/15

New Zealand's first Kalydeco kid, Chairpersons' Conference, Branch News, Auckland Marathon, Lizzie McKay's big OE

CF Panui

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CF Panui – January 2019

This issue features a call for applications for the CF Achievers' Award and the Mark Ashford Scholarship, the newly developed school guides, an update on advocacy and more.

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CF Panui – December 2018

This issue features CFNZ's 50th year celebration, the Wellington Christmas Tree Festival, and update on the Kalydeco campaign and more.

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CF Panui – November 2018

This issue features an update on advocacy, CF research initiatives, our inaugural Blue Shirt Week with the help of PARI, our Christmas Tree Festival at Wellington Airport and more.

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CF Panui – October 2018

This issue features an update on our Kalydeco campaign, the CFA Mental Health Roadshow and an update on research.

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CF Panui – September 2018

This issue features an update from our board, the launch of our Kalydeco campaign, fundraising superstars and a call for Mark Ashford Scholarship applications.

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CF Panui – August 2018

This issue features an update on Orkambi in Australia, Awareness Week, videos and new resources.

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CF Panui – July 2018

This issue features an update on Awareness Week, our fundraising guide, the launch of our new website and the development of new resources.

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CF Panui – June 2018

This issue features Nigel Latta appearance in Christchurch, Pharmac's Consumer Voice Review, Awareness Week, CF Speedway driver and Hawke's Bay Casino Night.

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CF Panui – May 2018

This issue features scholarship win for CF student, update from the Board, new CFNZ logos, new CFNZ Office Manager, pharmac news and tribute to Anna Scoullar-Jones

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CF Panui – April 2018

This issues features Dancing with the Stars All Star Family Feud, First Dates NZ CF contestant, CF Achievers' Awards, Pharmac update - from Pharmac Chief Executive.

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CF Panui – March 2018

This issue features New Developments in CF seminar, update from the Board, Clinical Advisory Panel announcement and new Breath4CF deadline date.

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CF Panui – February 2018

This issue features new Metaneb breathing machines for Auckland, CFNZ and PARI's Joint 50th anniversary, TOBI Podhaler update, Newly Diagnosed Guide, New Social Work Guidelines & next generation Orkambi.

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CF Panui – January 2018

This issue features update from the Chief Executive, gene editing in NZ, CF Achievers' Awards open, new CFNZ publications review, Running for CF and Climbing Everest for CF.

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CF Panui – December 2017

This issue features Charity Cricket, Update from the Board, Wellington Xmas Tree Festival, Claire's Mountain Climbing Expedition & CFNZ Raffle Draw.

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CF Panui – November 2017

This issue features Wellington Xmas Tree Festival, Crusaders Charity Cricket, update from the Chief Executive, Auckland and Queenstown marathons.

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CF Panui – October 2017

This issue features Auckland University Sportsman of the Year - Vaughan Somerville, update from the Chief Executive, new Adult Rep, Poletoberfest, Pharmac update, Kiwibank hero - Melissa Skene, Citramel study results, CFNZ Raffle & Charity Cricket.

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CF Panui – September 2017

This issue features Hawke's Bay Casino Night record win, update from the Board and new board members, Canterbury's 30th Golf Tournament & gene editing lectures.

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CF Panui – August 2017

This issue features Awareness Week wrap, CF on Shortland St, CFNZ Board elections, call for clinicians, Cystic Sister's transplant, Max - the little rippa, CF voting at The Warehouse, CF Hub, CF Good Sort on 1 News & HB Casino Night