416 CF

Newsletters

We publish two newsletters  our twice-yearly CF News magazine and our monthly CF Panui.

 

Here you'll find past editions of CF News, and keep scrolling down to read our Panui. You can sign up to subscribe to receive either newsletters (or both). If you've got a special event, would like to share your story or have something to shout about, please let us know

CF News magazine

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CF News – Spring 2021

Meet our 2021 Mark Ashford Scholarship recipient Emma Gawn, and our four CF Achievers' Award winners. Hear all about James and Alana's fabulous free wedding, and Dan and Jessica's epic 65 hours of bowls. Read the latest in advocacy and the Trikafta Campaign.

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CF News – Autumn 2021

Charlie and his Chocky Fish fundraising efforts, Bella's positive experience on Trikafta, an update on CF Month 2021, the impact of covid on the CF community, and a progress update on the Trikafta campaign.

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CF News – Winter 2020

Sweat4CF, our latest fundraising campaign kicks off, the positive impact of Trikafta & an advocacy update, and an introduction to our Mark Ashford Scholarship recipient & CF Achievers' Award recipients for 2020.

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CF News – Summer 2020

Kalydeco funding win for Kiwis, parent's perspective on transition, welcoming to our fourth Fieldworker, Kirsty's Trikafta journey, and research & advocacy updates.

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CF News – Winter 2019

Meet our CF Superstars; the recipients of the Mark Ashford Scholarship and the CF Achievers’ Awards for 2019, Kalydeco recommended for funding, CF in the workplace, and a spotlight on our fieldworkers.

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CF News – Winter 2018

Nigel Latta in Christchurch, Dancing with the Stars win for CF, NZ Joins Global Liver Study, and Meet our CF Achievers.

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CF News – Summer 2018

Alana’s Adventures, CF on Shortland St, Top Scholars, Research News – Trends in NZ CF Care, Gene Editing in NZ, CF Adult News – “I was lucky to get on transplant list”.

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CF News – Winter 2017

Meet our CF Achievers, CF Surfers in Southland, Research News: 3D Printed Lungs? CF Adult News: CF at 63!

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CF News – Summer 2017

Cystic Sisters' TV reward, hunting for the perfect home, NZ research news, Branch News, new CFNZ staff members & CF Adult News

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CF News – Winter 2016

Surfing for CF, CF Achievers, Mark Ashford Scholarship, CF Conference report, Cystic Sisters' 65 days of good deeds & CF Adults travel the world.

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CF News – Summer 2016

Big move for Molly and family, CF Achievers, Mark Ashford Scholarship, battling the bugs, Justin's amazing transplant recovery

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CF News – Winter 2015

Hayden's California's wish is granted, CF Conference, Challenge Wanaka, work tips for Adults

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CF News – Summer 14/15

New Zealand's first Kalydeco kid, Chairpersons' Conference, Branch News, Auckland Marathon, Lizzie McKay's big OE

CF Panui

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CF Panui – October 2021

Meet our new Chief Executive, Lisa Burns. Read all about the success of SWEATEMBER, and check out our sweaty champions in the media. A COVID-19 update and vaccine advice, and a note from our Fieldworkers.

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CF Panui – September 2021

SWEATEMBER is here! Read about how you can get involved. Changes ahead for CFNZ as Jane Bollard resigns, an advocacy update, community fundraisers, lockdown tips and more.

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CF Panui – July 2021

Huge advocacy waves made: Trikafta Managed Access Programme announced, Medsafe grants Trikafta application priority status, help shape the future of CF support through the Insight Survey, and more.

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CF Panui – June 2021

CF Awareness Month Success! CF Raffle tickets for sale, a large advocacy update, and Trikafta Wall of Wishes.

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CF Panui – May 2021

Its CF Awareness Month! Find out how you can get involved, get your raffle tickets, advocacy update, and more.

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CF Panui – April 2021

Pharmac, Medsafe, Vertex & CFNZ talk dug funding, CF Month in May, and Covid-19 vaccine advice from CAP.

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CF Panui – February 2021

An advocacy update: how to contact your local MP, share your story, speak to the media, sign the petition. Links to Newshub 'Because it matters' series, featuring Bella, Ed and Izaeah - New Zealanders privately accessing Trikafta.

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CF Panui – December 2020

Christmas Tree Festival launched, an Advocacy Update, 2021 Award Applications now open, and more.

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CF Panui – November 2020

Trikafta Advocacy Update, Christmas Tree Festival news, 2021 Award Applications now open, and more.

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CF Panui – October 2020

A Sweatember success, Christmas Tree Festival on its way, advocacy update, and stories from the community.

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CF Panui – September 2020

SWEATEMBER is here! Tribute to Sir Bob Elliott, a Board & advocacy update, community stories and more.

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CF Panui – April 2020

Introducing our CF Achievers' Award recipients for 2020, a COVID-19 update, some expert isolation inspiration, and more...

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CF Panui – August 2020

SWEATEMBER is nearly here, an update on Advocacy & Trikafta for Kiwis, a focus on well-being with Beam, and more.

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CF Panui – March 2020

COVID-19 update for our CF community, Kalydeco funding win, some great community stories, Awareness Week dates for 2020, and more.

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CF Panui – July 2020

Launching SWEAT4CF, CF Week news, an advocacy update, showing gratitude for our funders, and more.

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CF Panui – November 2018

This issue features an update on advocacy, CF research initiatives, our inaugural Blue Shirt Week with the help of PARI, our Christmas Tree Festival at Wellington Airport and more.

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CF Panui – June 2019

This issue features an update on research, stories from our community, new resources, our winter raffle appeal and more.

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CF Panui – August 2019

It's Awareness Month! Read about our new campaign, meet Sophia our school video superstar, and an update from the Board.

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CF Panui – October 2019

Help get life changing medicines funded in NZ, meet Alex McKay our new adult rep on the CFNZ board, take part in the latest research, and check out some great fundraising efforts across the country.

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CF Panui – December 2019

This issue features an update on current petitions, changes to the supply of vital equipment, an introduction of our new CFNZ board chair and more

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CF Panui – June 2020

Knighthood for Prof Bob Elliot, Sweat 4 CF, Creon Micro announcement, and more...

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CF Panui – January 2018

This issue features update from the Chief Executive, gene editing in NZ, CF Achievers' Awards open, new CFNZ publications review, Running for CF and Climbing Everest for CF.

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CF Panui – November 2017

This issue features Wellington Xmas Tree Festival, Crusaders Charity Cricket, update from the Chief Executive, Auckland and Queenstown marathons.

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CF Panui – October 2017

This issue features Auckland University Sportsman of the Year - Vaughan Somerville, update from the Chief Executive, new Adult Rep, Poletoberfest, Pharmac update, Kiwibank hero - Melissa Skene, Citramel study results, CFNZ Raffle & Charity Cricket.

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CF Panui – September 2017

This issue features Hawke's Bay Casino Night record win, update from the Board and new board members, Canterbury's 30th Golf Tournament & gene editing lectures.

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CF Panui – August 2017

This issue features Awareness Week wrap, CF on Shortland St, CFNZ Board elections, call for clinicians, Cystic Sister's transplant, Max - the little rippa, CF voting at The Warehouse, CF Hub, CF Good Sort on 1 News & HB Casino Night

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CF Panui – May 2018

This issue features scholarship win for CF student, update from the Board, new CFNZ logos, new CFNZ Office Manager, pharmac news and tribute to Anna Scoullar-Jones

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CF Panui – June 2018

This issue features Nigel Latta appearance in Christchurch, Pharmac's Consumer Voice Review, Awareness Week, CF Speedway driver and Hawke's Bay Casino Night.

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CF Panui – July 2018

This issue features an update on Awareness Week, our fundraising guide, the launch of our new website and the development of new resources.

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CF Panui – October 2018

This issue features an update on our Kalydeco campaign, the CFA Mental Health Roadshow and an update on research.

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CF Panui – December 2018

This issue features CFNZ's 50th year celebration, the Wellington Christmas Tree Festival, and update on the Kalydeco campaign and more.

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CF Panui – March 2019

This issue features an update on the Kalydeco campaign, stories from our community, a position statement for healthcare workers with CF and more.

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CF Panui – April 2019

This issue features an update on DHBs taking on the responsibility of funding vital CF medical equipment, a look at increasing clinical trials in NZ, support for a big piece of research, the announcement of the Mark Ashford Scholarship recipient and more.

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CF Panui – July 2019

This issue contains advocacy updates, important information around our newly updated cross infection policy, a sibling survey, and more.

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CF Panui – September 2019

Catch up on all things CF Week, CF in the media, next year's Awareness Week dates, and improving access to CF medications.

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CF Panui – November 2019

Learn about the recent CF medication milestones overseas, help CF research in NZ by taking part in the latest surveys, and more.

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CF Panui – May 2020

A COVID-19 Update, Emergency Appeal Launched, Mark Ashford Scholarship 2020 recipient announced, some cool online fundraisers, and more...

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CF Panui – April 2018

This issues features Dancing with the Stars All Star Family Feud, First Dates NZ CF contestant, CF Achievers' Awards, Pharmac update - from Pharmac Chief Executive.

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CF Panui – March 2018

This issue features New Developments in CF seminar, update from the Board, Clinical Advisory Panel announcement and new Breath4CF deadline date.

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CF Panui – February 2018

This issue features new Metaneb breathing machines for Auckland, CFNZ and PARI's Joint 50th anniversary, TOBI Podhaler update, Newly Diagnosed Guide, New Social Work Guidelines & next generation Orkambi.

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CF Panui – December 2017

This issue features Charity Cricket, Update from the Board, Wellington Xmas Tree Festival, Claire's Mountain Climbing Expedition & CFNZ Raffle Draw.

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CF Panui – August 2018

This issue features an update on Orkambi in Australia, Awareness Week, videos and new resources.

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CF Panui – September 2018

This issue features an update from our board, the launch of our Kalydeco campaign, fundraising superstars and a call for Mark Ashford Scholarship applications.

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CF Panui – January 2019

This issue features a call for applications for the CF Achievers' Award and the Mark Ashford Scholarship, the newly developed school guides, an update on advocacy and more.