Guides to cystic fibrosis

Our informative guides have been specifically developed with the help of the CF community, for the CF community. If you'd like to request printed versions of these guides, or to be involved in the development of future guides, please email info@cfnz.org.nz.

Guide to Cystic Fibrosis for Family and Friends

This guide is for New Zealanders who have had a friend, whānau or family member’s child diagnosed with cystic fibrosis (CF). It aims to give you a better understanding of what CF is, how it impacts on the child and their family and how you can offer the best support.

It covers the basic information about what CF is, how it's diagnosed, day-to-day life, and lots of practical tips.

You can download and view the PDF below, or get in touch with us for a printed copy.

Download the Guide to CF for Family, Whānau and Friends
037 CF Finals
Tiny Tailen 2018

Guide for Parents and Caregivers of Children Diagnosed with CF in New Zealand

This guide is for parents and caregivers whose child has been diagnosed with cystic fibrosis (CF), to help you and your family understand CF and learn how you can help your child grow and thrive.

Most of the information focuses on supporting you through your child’s first year following diagnosis as a newborn and throughout the booklet, children and their parents share their stories about living with CF and tips for daily life.

This guide has been developed together with ‘A Guide to Cystic Fibrosis for Family, Whānau and Friends’ that extended family and whānau members and friends can read to help support you and your family.

You can download and view the PDF through the link below, or get in touch with us to request a printed copy.

Download the Guide for Parents and Caregivers of Children Diagnosed with CF

Starting School: A guide to cystic fibrosis for primary schools and teachers

This guide is for New Zealand primary schools and teachers who have a child with cystic fibrosis (CF) starting at their school. It aims to give you a better understanding of what CF is, how it impacts on the child and their family and what teachers can do to help the child succeed at school.

It has been developed together with ‘Starting School: A guide for parents and caregivers of children with cystic fibrosis'.

 

Download Starting School: A guide to cystic fibrosis for primary schools and teachers

Starting School: A guide for parents and caregivers of children with cystic fibrosis

This guide is for New Zealand parents who have a child with cystic fibrosis (CF) starting primary school. It has been developed together with ‘Starting School: A guide to cystic fibrosis for primary schools and teachers’.

It offers practical advice about topics to discuss with your child’s school and teachers, and offers tips from other parents of school-aged children with CF.

 

Download Starting School: A guide for parents and caregivers of children with cystic fibrosis

Where to from here?

As your baby grows – from a newborn, to a toddler, to a pre-schooler and then on to school, the information and support you want, and need, will change.

Cystic Fibrosis New Zealand is here for you, no matter what stage of the journey you are on. We've put together a handy guide with a few of the ways we can support you for you to refer to along the way.

Download this mini guide