5 August 2020

We’re thrilled to have received a grant from the Health Promotion Agency/Te Hiringa Hauora to develop an Adult Wellbeing Guide.

This guide is aimed at people with cystic fibrosis aged 15 and over and will include topics such as nutrition (including alcohol), travelling, mental and emotional wellbeing, exercise, sexual health and fertility/pregnancy/family planning.

We’ll also use the guide to broaden our content for adults with CF on the website.

Can you help?

We need input from adults with CF to make sure this guide includes helpful, relevant information for New Zealanders.

There are a few ways you can help, pick one or pick all:

• Fill in a short survey about what information and topics are the most important for adults with CF in New Zealand.
• Review the draft guide and provide feedback before it’s published.
• Provide quotes about how you manage day to day life with CF.
• Feature in the guide – we’ll provide the photographer, you provide the smiles.

Or if you think you can help in another way we’d love to hear from you. Please email our medical writer Sarah: sarah@sayline.co.nz