048 CF Finals

Helpful links

On this page are some of the many internet links that can provide you with further information about cystic fibrosis.  We support safe web surfing and each link is a reputable source.

Parenting resources

Visit website


SKIP is a nationwide network of individuals, community groups, government agencies, workplaces and national NGOs. Our aim is for all children in New Zealand to be raised in a positive way by parents and caregivers who feel confident about managing children's behaviour as part of a loving, nurturing relationship.

Visit website

Parenting Resource

Designed for use by workers supporting families with young children. The resource includes parenting and child development information covering pregnancy through to three years of age. www.parentingresource.nz

Visit website

Carers NZ

A charity which provides information, advice, learning and support for families with health and disability needs. www.carers.net.nz

Visit website

Parent to Parent NZ

Seeks to support, educate and empower families who have a child or family member with disabilities, health impairments or special needs. As our name implies, we aspire to capture the essence of experiences, strengths, and hopes of parents supporting parents. www.parent2parent.org.nz

Other CF organisations

Visit website

Cystic Fibrosis Worldwide

A non-profit organization located in Massachusetts, USA and Izmir, Turkey. CFW is dedicated to improving quality of life and life expectancy for people living with cystic fibrosis.

Visit website

The European Cystic Fibrosis Society

The European Cystic Fibrosis Society provides an international forum on all aspects of Cystic Fibrosis. The ECFS champions and fosters the best possible care for people with cystic fibrosis. The ECFS addresses these challenges through the promotion of high quality research and education.

Visit website

Cystic Fibrosis Research, Inc.

Funds research, to provide educational and personal support, and to spread awareness of cystic fibrosis.