1 May 2023

Hi everyone...

Happy CF Awareness Month!

As the Kindness Manager at CFNZ, I wanted to let you know what we are going to be doing throughout the month to raise critical funds for Kiwis living with CF.

While getting funded access to Trikafta is a significant achievement in the treatment of CF in New Zealand, it doesn’t change the reality that people still have CF, it’s a lifelong condition that puts a lot of pressure on our individuals and families. The support and assistance we provide is vital for quality of life, and it’s never been more important for our community.

It takes courage to live with and survive with CF, and we need to make sure we can be there when our community needs us; we’re in this, paws and all.

Funds raised provide vital support that includes:

• Wrap around support for parents with a newly diagnosed baby.
• CFNZ Social Workers who deliver practical and emotional support to families.
• Help with travel, accommodation, and food costs for families navigating a transplant.
• Welfare support with bills, housing, and household costs like heating and groceries when the pressures of managing the condition becomes too much.
• Physical activity grants that remove barriers to exercise to help people with CF stay active.
• Hospital grants and vouchers to ease pressure during hospitalisations.
• End of life support and help with funeral costs.

So, this month we are asking Kiwis to BE THE RELIEF, and give hope to families who are still navigating the reality of living with a life-threatening, chronic condition.

Can you make a Deliberate Act of Kindness this May? There are so many ways you can get involved:

1. Donate - click HERE to make a tax deductible donation.
2. Share - using your social channels you can share our posts with your friends and family or create your own.
3. Buy Chocky Fish - click HERE to buy 1, 2 or 3 boxes of Chocky Fish to share or use for fundraising.
4. Buy Merch - click HERE to purchase some of our limited edition merchandise for CF Month.

Thank you for your kindness, we appreciate it beary much.

Nga mihi
Fred Bear and the CFNZ Team