Photo 23 01 20 10 54 29 AM
Photo 23 01 20 10 54 29 AM
23 Jan

Huffing and Coffin all the way to Parliament

23 January 2020

We are incredibly proud of our CF community members Camilla and Julian ( for their epic tandem ride from Dunedin to Parliament, demanding for a PHARMAC funding boost.

During their ride up the country, Julian and Camilla spread the word about the lack of medicine funding in NZ and managed to add around 600 signatures to the petition for a reform of PHARMAC and to double their budget.

CFNZ would like to express our sincere thanks and admiration to you both for putting yourself out there and for making such a statement to politicians and the NZ public on this important issue. You both spoke so passionately and openly, and one could not help but sit up and take notice.

As part of our commitment to advocacy, CFNZ contracted Lorelei Mason to work with us together with Patient Voice Aotearoa. We were delighted to see 30+ media engagements for Julian and Camilla’s ride.

The petition numbers are increasing but the closing date is fast approaching. If you haven’t signed the petition, you can do so here.


Julian and Camilla’s Tandem in the media:


Media generated from Parliament arrival


Newshub TV3 News 6pm Jan 22nd

TVNZ Online and 6pm Jan 22nd

RNZ National - Checkpoint with Lisa Owen Jan 22nd

RNZ News

Stuff Jan 22nd

The NZ Herald Jan 22nd

ODT Jan 22nd

Newshub Radio (snippets from an interview used in hourly radio news bulletins) Jan 22nd

Voxy Jan 20th

Scoop Jan 20th

Wellington Scoop

ODT Jan 23rd


Media from the journey up from Dunedin to Picton 

(In publish date order)


MSN Jan 2nd

Otago Daily Times Jan 3rd’s-plight-spurs-cycle-odyssey

Newstalk ZB News Jan 3rd

Newshub Online and Radio News Jan 3rd

Voxy Jan 3rd

1News 6pm Jan 4th

Stuff - The Press Jan 5th

Gore Ensign (go to page 3) Jan 8th

The Cromwell Bulletin Jan 9th

Timaru Herald Jan 10th

Timaru Herald Jan 14th

Ashburton Guardian (the online Guardian is behind a subscription paywall) Jan 15th

North Canterbury News

TVNZ Jan 16th

RNZ Jan 16th

Wanaka Sun Jan 16th

Compass Radio Jan 16th

Marlborough Express/Stuff Jan 17th

Dunedin Radio – Owen Rooney Show Jan 20th

Ashburton Courier (via the ODT online) Jan 20th