19 November 2020
Attention all adults who've had a lung transplant! Here's a fantastic opportunity to contribute to international best practice.
The Model of Post-Transplant Care Transplant Recipients and Loved Ones survey has been developed in partnership with the Cystic Fibrosis Foundation and an international group of CF and transplant clinicians.
The survey will be used to develop an international white paper to provide best practices around shared models of post-lung transplant CF care. Feedback is sought from people with CF and families.
We encourage you to complete the survey, which takes approximately 10 minutes to complete, and will help inform international best practice.
The survey closes on 30 November 2020. Please note, when you begin the survey it says it closes on 16 November, but the closing date has been extended.
Last year we also developed a survey to better understand the experiences of adults with CF who’d received a lung-transplant. Our aim was to find out their views on the health system, access to relevant support and information, ongoing care needs and any challenges post-lung transplant. We also asked for feedback on CFNZ services and support.