091 CF

Other resources and guidelines

Cystic Fibrosis National Clinical Network

Starship Clinical Guidelines: National Child and Youth Cystic Fibrosis Clinical Network, including infection control recommendations and information for newly diagnosed families.

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Newborn Screening and Diagnostic Protocol

Starship Clinical Guidelines: Newborn Screening and Diagnostic Protocol for Cystic Fibrosis in New Zealand for health professionals.

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A Guide for Carers 2016

Produced by the Ministry of Social Development. Practical help for people supporting family or friends who are older and need assistance, or who have a health condition, a disability, an injury or mental health, alcohol and drug issues.

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Clinical Practice for Social Work Guidelines 2017

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Cystic Fibrosis Standard of Care in NZ - Jan 2010

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MP briefing letter from Cystic Fibrosis New Zealand

As part of world Rare Disease Day on 28 February, Cystic Fibrosis New Zealand wrote to all 120 MPs in New Zealand to highlight some of the issues facing the CF community. Here's a copy of that letter.