Welcome | Our Goals | Our Activities | Your Support | Staff & Board Profiles | Contact Us

Welcome to the

Cystic Fibrosis New Zealand website

Established in 1968, The Cystic Fibrosis (CF) Association of New Zealand has been supporting the people with CF and their families ever since, by increasing awareness of the condition, education, advocacy, helping fund research, and providing social and financial support.

The CF Association offices are located in Christchurch but with twelve branches throughout New Zealand assistance is not far away. Branches provide local support for CF families: experience and information sharing, social functions, fundraising and financial support.

» Our Goals

The Cystic Fibrosis Association of New Zealand's goal is to increase the life expectancy for people with cystic fibrosis and improve the quality of life for them and their families; And through research to achieve better control and an ultimate cure for the condition.

» Our Activities

The Association is here to:

Provide an information service about Cystic Fibrosis (CF), publishing books, brochures, and other media about CF and maintaining a library of these materials
Support people with CF and their families, through welfare assistance, fieldworkers, and grants and scholarships to encourage physical activity, tertiary education, conference attendance and other beneficial activities
Promote public awareness of CF through Awareness Week, media stories and other activities
Communicate and co-ordinate through newsletters and conferences
Provide educational opportunities for peopl with CF, their families and health professionals to learn about management of and therapies for CF
Advocate on behalf of the CF communityto Government and other agencies
Encourage and fund CF research
Raise funds to ensure that our important services for the CF community continue into the future

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» Your Support

The Cystic Fibrosis Association needs your help to conduct its vital family support: information, education, research and other services

How can you help?

A personal donation or business sponsorship
Approaching your local service club, community group, workplace or other organisation to donate funds
Giving to our work in your will. Legacies and bequests are thoughtful ways of giving continued support
Offering your time and expertise as a volunteer for fundraising or other activities

Further information on hou you can help the Association carry out its activities can be found at How can you help?

The Cystic Fibrosis Association is registered with the NZ Charities Commission (CC10274) and our Fundraising Team are all active members of the Fundraising Institute of New Zealand and adhere to their Code of Ethics and Conduct

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» Staff & Board Profiles

A short introduction to the members of Board of Governance and to staff members who work for the Association.

Board Members

Staff members

Jane Drumm

Chairperson,

Board member: Shares in Life Foundation

Jane has two children with Cystic Fibrosis and lives in Auckland with her family. Jane is also the Co-Chair of the Auckland Branch of the Association and brings with her a depth of knowledge and experience in the not-for-profit sector, gained from her service to the CF community, time working in community development for the city council and various roles at her childrens' schools. Jane has been the Chairperson since 2006.

Kate Russell FFINZ

Chief Executive

Kate's career in the not-for-profit sector spans 17 years. She heads up the team at the Association and is responsible for all lobbying, human resources, research administration and key strategic projects and relationships. Kate is the first point of contact for all strategic projects and staffing enquiries.

Kate is also Chair of Pharmac's Community Advisory Council, and Chair of Fundraising Institute NZ Ethics Committee.

John Parsons

Board Member,

Chair: Investment Committee,

Board Member: Shares in Life Foundation

John is an orchardist from Hawkes Bay and has one young adult daughter with Cystic Fibrosis. John holds the finance portfolio on the Board and offers a wealth of experience in the investment space. John also serves as Treasurer on the Hawkes Bay CF Branch Committee.

Caroline Wagteveld McKenzie MFINZ

Fundraising & Events Coordinator

Caroline has been with the Cystic Fibrosis Association for six years and is the first point of contact when you visit the National Office. Caroline is the Coordinator for Crusaders Charity Cricket, the National Raffle, Ironman Buddy system and Kids Club magazine and works with a variety of sponsors to plan and execute events.

Margaret Nicholls

Board Member

Margaret hails from Wellington and has two adult sons with Cystic Fibrosis. A trained nurse, Margaret is also the Chairperson of the Wellington branch of the Association. Margaret brings an empathetic and caring attitude to her work on the Board.

Julie Clemett

Administrator

Julie is responsible for all administrative functions and is our financial controller. She is also our webmaster and in charge of the CF Membership database. Julie can help with all branch administration enquiries and is our first point of contact for all general queries about the Association and our services.

John Elliot

Board Member

John hails from Cambridge in the Waikato and has one child with Cystic Fibrosis. John is a Regional Sales Manager - North Island for his company and brings with him a practical, no-nonsense attitude an a great deal of business acumen. His eye for 'what works' in a marketing sense is highly valued.

Sally Carron

Northern Fieldworker

Sally's role takes in Cape Reinga to the Wairarapa. She is responsible for all social work with people with CF and their families within the region. Sally can provide advice on all aspects on the condition, as well as life-planning and liaison with government agencies.

Toni Durant

CF Adult Representative to the Board

Toni lives in Auckland with her partner, and is currently the Events and Communications Manager for Auckland Grammar School.

Sue Lovelock

Southern Fieldworker

Susan's role takes in Wellington and the Kapiti Coast to Bluff. She is responsible for all social work with people with CF and their families within the region. Susan can provide advice on all aspects of the condition, as well as life-planning and liaison with government agencies.

Lisa Borkus

CF Adult Representative to the Board

Lisa is a Mum of two and lives in Christchurch. Lisa has been instrumental in a revival of closer friendships and social networking amongst our CF Adults and is a wonderful connector of people and resources.

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