Welcome to the
Cystic Fibrosis New Zealand website
Established in 1968, The Cystic Fibrosis (CF) Association of New Zealand has been supporting the people with CF and their families ever since, by increasing awareness of the condition, education, advocacy, helping fund research, and providing social and financial support.
The CF Association offices are located in Christchurch but with twelve branches throughout New Zealand assistance is not far away. Branches provide local support for CF families: experience and information sharing, social functions, fundraising and financial support.
The Cystic Fibrosis Association of New Zealand's goal is to increase the life expectancy for people with cystic fibrosis and improve the quality of life for them and their families; And through research to achieve better control and an ultimate cure for the condition.
The Association is here to:
- Provide an information service about Cystic Fibrosis (CF), publishing books, brochures, and other media about CF and maintaining a library of these materials
- Support people with CF and their families, through welfare assistance, fieldworkers, and grants and scholarships to encourage physical activity, tertiary education, conference attendance and other beneficial activities
- Promote public awareness of CF through Awareness Week, media stories and other activities
- Communicate and co-ordinate through newsletters and conferences
- Provide educational opportunities for peopl with CF, their families and health professionals to learn about management of and therapies for CF
- Advocate on behalf of the CF communityto Government and other agencies
- Encourage and fund CF research
- Raise funds to ensure that our important services for the CF community continue into the future
The Cystic Fibrosis Association needs your help to conduct its vital family support: information, education, research and other services
How can you help?
- A personal donation or business sponsorship
- Approaching your local service club, community group, workplace or other organisation to donate funds
- Giving to our work in your will. Legacies and bequests are thoughtful ways of giving continued support
- Offering your time and expertise as a volunteer for fundraising or other activities
Further information on hou you can help the Association carry out its activities can be found at How can you help?
The Cystic Fibrosis Association is registered with the NZ Charities Commission (CC10274) and our Fundraising Team are all active members of the Fundraising Institute of New Zealand and adhere to their Code of Ethics and Conduct
A short introduction to the members of Board of Governance and to staff members who work for the Association.
Board member: Shares in Life Foundation
Jane has two children with Cystic Fibrosis and lives in Auckland with her family. Jane brings with her a depth of knowledge and experience in the not-for-profit sector, gained from her service to the CF community, time working in community development for the city council and various roles at her childrens' schools. Jane has been the Chairperson since 2006.
Kate Russell FFINZ
Kate's career in the not-for-profit sector spans 17 years. She heads up the team at the Association and is responsible for all lobbying, human resources, research administration and key strategic projects and relationships. Kate is the first point of contact for all strategic projects and staffing enquiries.
Kate is also Chair of Pharmac's Community Advisory Council, and Chair of Fundraising Institute NZ Ethics Committee.
Chair: Investment Committee,
Board Member: Shares in Life Foundation
John is an orchardist from Hawkes Bay and has one young adult daughter with Cystic Fibrosis. John holds the finance portfolio on the Board and offers a wealth of experience in the investment space. John also serves as Treasurer on the Hawkes Bay CF Branch Committee.
Caroline Wagteveld McKenzie MFINZ
Fundraising & Events Coordinator
Caroline has been with the Cystic Fibrosis Association for six years and is the first point of contact when you visit the National Office. Caroline is the Coordinator for Crusaders Charity Cricket, the National Raffle, Ironman Buddy system and Kids Club magazine and works with a variety of sponsors to plan and execute events.
Margaret hails from Wellington and has two adult sons with Cystic Fibrosis. A trained nurse, Margaret is also the Chairperson of the Wellington branch of the Association. Margaret brings an empathetic and caring attitude to her work on the Board.
Julie is responsible for all administrative functions and is our financial controller. She is also our webmaster and in charge of the CF Membership database. Julie can help with all branch administration enquiries and is our first point of contact for all general queries about the Association and our services.
John hails from Tauranga in the Bay of Plenty and has one child with Cystic Fibrosis. John is a Regional Sales Manager - North Island for his company and brings with him a practical, no-nonsense attitude an a great deal of business acumen. His eye for 'what works' in a marketing sense is highly valued.
Northern High Needs Fieldworker
Sally's role has recently changed to reflect the needs of our changing CF population. Her new role focuses on thos with higher support needs and providing advice on all aspects on the condition, as well as life-planning and liaison with government agencies.
CF Adult Representative to the Board
Toni lives in Auckland with her partner, and is currently the Communications and Events Manager for Cure Kids.
Melinda is responsible for all social work concerning the care of people with CF and their families in the region of Cape Reinga to the Wairarapa. Melinda can provide advice and education on all aspects of this condition.
CF Adult Representative to the Board
Lisa is a Mum of two and lives in Christchurch. Lisa has been instrumental in a revival of closer friendships and social networking amongst our CF Adults and is a wonderful connector of people and resources.
Susan's role takes in Wellington and the Kapiti Coast to Bluff. She is responsible for all social work with people with CF and their families within the region. Susan can provide advice on all aspects of the condition, as well as life-planning and liaison with government agencies.
All CFANZ Board Members are also Trustees for Shares in Life Foundation.
Charity Dinner & Auction
Saturday 8 June.
17-20 August, 2013
Rendezvous Hotel, Auckland
Adidas Auckland Marathon
Please note 'Accounts' are for Branch Executives to have access to management and goverance information.