Welcome to the

Cystic Fibrosis New Zealand website

Take some time to navigate around our information pages. If you have an interest in CF-related matters, why not sign up for our newsletter or post a question on our message board.   The Cystic Fibrosis Association is an incorporated society providing membership for regional groups, businesses and individuals who wish to work together in support of people with cystic fibrosis and their families. There are branches in most regions to provide local support.           "Christchurch people love their water and we think, given the choice, they would rather have the home-bottled brand over any others, especially when the profit from every bottle sold comes to the Cystic Fibrosis Association. To order your supplies...

» Our Goal

The goal of the Association is to ensure increased life expectancy for people with cystic fibrosis and improved quality of life for them and their families; and through research to achieve better control and ultimate cure for the illness. Currently there are funds available for CF Research; applications should be made through Child Health Research (Cure Kids). An application form is available online at www.childhealth.org.nz

» Our Activities

The Cystic Fibrosis Association's activities include:

• Providing an information service about CF, publishing brochures and other printed material.
• Promoting public awareness of CF.
• Providing support for people with CF and their families,e.g. conference travel grants, welfare assistance.
• Providing educational opportunities for people with CF, e.g. tertiary study grants and scholarships , and achievers awards .
• Communication and co-ordination through newsletters and conferences.
• Providing a voice to Government and agencies on behalf of the CF community.
• Encouragement and funding for CF research.

» Your Support

The Cystic Fibrosis Association needs your help to conduct its vital family support, education, information
and research services .

Options include:

• A personal donation or business sponsorship
• Approaching your local service club, community group, workplace or other organisation to donate urgently needed funds
• Leaving a legacy or bequest in your will.
• Volunteering for fundraising or other activities. 

There have been a lot of questions raised in the media about how much money from donations actually gets to the ‘end- user' and rightly so.  As we have all heard, some charities out there are giving the rest of us a bad name by not being transparent in how much money from each dollar raised gets put toward programmes for those who need help the most.

Here at CFANZ, we have always taken great care to run a ‘lean and mean' operation. We do not have a huge staff and our largely volunteer structure in the branches means we can keep our costs down.

Here is a broad breakdown of where our money goes:

Administration and Fundraising Costs               8%

Administration and Fundraising Salaries          21%

Information and Education                              14%

Lobbying and Advocacy                                     4%

Social Work and counseling                             16%

Grants, equipment and financial support          35%

Research and Clinical support                            3%

Governance                                                        2%

This shows you that we are an organisation that can hold its head high in the ‘charity marketplace' as one that uses its funds wisely and ensures that we only spend what is absolutely necessary on administrative costs. 

The Cystic Fibrosis Association is registered with the NZ Charities Commission (CC10274) and our Fundraising Team are all active members of the Fundraising Institute of New Zealand and adhere to their Code of Ethics and Conduct