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» Latest News
December 2011:
Bay of Plenty Christmas Tree Festival
CF Bay of Plenty's first Christmas Tree Festival was a big learning curve for the branch, which they have pulled of beautifully. The festival opened on December 5 at the Bethlehem Town Centre, drinks flowed, the band played, and the festival opened by MP Simon Bridges.
Thanks to some great local businesses for their support in decorating a tree for the festival. Some of note were The Children's Ward Tauranga Hospital, and 
Autism Inc BOP. Without the support of these businesses and from the people of the local CF branch this event would not have been such a highlight.
Congratulations to our lucky winning businesses:
1st: Brookfield Pharmacy
2nd: Montessori @ Bethlehem
3rd: Fitco
And a huge thank to all businesses involved. See you next year!
Sunshine Day is the day in every month the staff at Sovereign celebrate Sunshine Day, with fun activities designed to raise funds for the winning Sovereign Sunshine charity. This usually involves getting dressed in theme, and included a stair challenge, and a pie-throwing competition! A different team leads the fundraising each month, staff donations to the winning charity are matched by Sovereign also.
In the November vote Cystic Fibrosis NZ was lucky enough to come out with the largest number of votes and received $3,100 from the regular Sovereign Sunshine charitable donation pool, and the opportunity to receive further donations from Sovereign's November Sunshine Day.
A great day was had by all, and we would like to thank Sovereign for their support of the Cystic Fibrosis Association and the people in NZ with CF.
I've had it up to HERE↑ - from stress to strength
(2nd Edition)
Gaynor Parker and Umbrella Health are donating $3.50 from every book sold, to the Cystic Fibrosis Association of New Zealand - Wellington Branch.
Order your copy hot off the press! email: admin@umbrella-health.com
Price $35.00
Click here for back cover blurb
Crusaders Charity Cricket Wow! what a day. A great big THANK YOU to all our supporters, especially our sponsors large and small. Everyone's contribution is really appreciated. This year we broke all records with a whopping $20,000 raised for CF.
We would especially like to acknowledge the huge contribution from our major sponsors Christchurch Casino, MoreFM and ASB Bank.
November 2011:
CHRISTMAS IS COMING! Well it is getting closer, and the CF branches Wellington and Bay of Plenty are hosting Christmas Tree Festivals in celebration of the season. For information about the event nearest you, go to their event page: Wellington Bay of Plenty
Thomson Reuters NZFMA Charity Golf
Once again, this golf tournament has been a huge success with the weekend weather in Taupo being very kind to both the players and to Kate, Caroline and the volunteer crew from CF Hawkes Bay as they manned the tee's and extracted lots of cash from the golfers as they played the gorgeous Wairakei Golf Course. The charity auction was a huge success and the event has raised a record $35,000 for us this year.
Our huge thanks go to NZFMA, Thomson Reuters and to Avenues Event Management. We are delighted to also have been invited back for another year in 2012!
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» Media Releases
Little Grace makes a Big Impression
The Cystic Fibrosis Association’s annual Awareness Week kicks off on Monday 15th of August. This year, they have adopted a ‘bubble’ theme which will see collectors out on the streets during the week seeing how big they can get their bubbles and how many they can make to draw attention to their cause. (more)
Health groups set to protest Pharmac Decision on Special Foods, 7 June 2011.
A recent decision to limit choice for Special Food supplements for people with serious chronic health conditions and metabolic disorders has health groups outraged. (more)
» Upcoming Events
2012
Summer Festival Charity Race Day
Saturday 28 January, Riccarton Park, Christchurch more
Galaxy of Cars
Sunday 26 February, Western Springs, Auckland more
Central South Island Charity Bike Ride
23 - 25 February, Timaru to Kurow to Tekapo to Timaru http://csicbikeride.co.nz/
Ironman New Zealand
Saturday 3 March, Taupo more
CFANZ National Conference including CF Allied Health Conference
11 - 13 May, Auckland more
CF Awareness Week / Bubbles Week 2012
13 - 19 August, Nationwide
dates yet to be confirmed for the following events, check back later.
CFANZ Branch Chairpersons Conference
NZFMA Thomson Reuters Golf Classic
2012 Crusaders Charity Cricket
» CF News
The Cystic Fibrosis Association of New Zealand produces a newsy magazine 'CF News', on a quarterly basis.
CF News has articles of interest on a variety of topics such as current CFANZ events, research being undertaken throughout the world, our people in New Zealand and what they are doing, a word or two from our CF Adult Rep and our CEO, as well as snippets from our friends, supporters and sponsors.
Our thanks go to Roche Products (New Zealand) Ltd for their support of CF News, and to Robyn from La Roche design for her continuing efforts in production.
The four most recent editions of CF News are available below:
If you would like to receive a printed copy of CF News please complete the form below, and your details will be added to our mailing list. (New Zealand addresses only please)
» Adult Rep News
This publication is aimed particularly at the adults with CF and is a newsy, chatty edition that raises awareness and issues for discussion.
The editor, Lisa Borkus, is the CF Adult Representative to the CFANZ Board, and in this role she:
- • acts as a conduit between the Board and the adult CF community,
- • raises any concerns and priorities of the adult CF community,
- • and takes part in policy planning on behalf of CF adults.
Lisa has been responsible for the revival of closer friendships and social networking amongst our CF adults, and is a wonderful connector of people and resources.
The four most recent editions are available below:
» CF Conferences
CFANZ National Conference including CF Allied Health Conference
11 - 13 May 2012 (Allied Health: 12-13 May)
Rendevous Hotel, Auckland.
"Striving for Better, Together"
with overseas guest speaker Alexandra Quittner, Professor of Psychology, Pediatrics, Otolaryngology University of Miami
Conference Information & Registration Allied Health Conference Information and Registration
Branch Chairperson's Conference 2012, dates yet to be confirmed
» In the News (papers)
Clippings from the newspapers that involve our people from around New Zealand
November 2011
- Beating the Odds: DesDustow_Wellingtonian_241111.pdf
October 2011
- Beaters & Breathers around Taranaki Beaters_Breathers_26Oct11.pdf
September 2011
- Good cause for chocolate fish: ChocFish_NthShrTms090911.pdf
- A life less ordinary, Jessica Boyd-Rushton: KaikStr_210911.pdf
- Wishes granted: WestLead130911.pdf
August 2011
- Ashley Butler talks about the effects of Phamramc's decision on food supplments: PharmacSubsTaranakiDaily190811.pdf and follow-up article: TaranakDaily220811.pdf
- Liam Neil of Hawera: LiamNeilTaranakiStar180811.pdf
- Queen Margaret College help with CF Appeal Week: QueenMargCollDomPost200811.pdf
- Napier's East Pier Gala for CF: EastPierGalaNapierMail170811.pdf
- Bubbles for a cause, Mac Elliot: MacElliotCambEdit170811.pdf
» Past Events & Fundraisers
He DID IT! Mike Wood cycles from Morrinsville to Christchurch to raise funds for CF!
“That’s all folks” Those are the last words of Mike Wood’s 13 May blog, 40k short of his Morrinsville to Christchurch bike-ride finish and how he thought it would be the next night. But it wasn’t.
Mike finished the challenge he set himself and well exceeded his fundraising target* ($10,000) to rousing cheers on the spot and later again that night from all the Conference delegates.
Who’d have expected 12 days of glorious weather for his ride, accompanied by wife Deb and daughter Briar. Maybe it was the spine-chilling haka the Morrinsville College performed at his send-off. All the way through, at local communities and schools there was a short stop to say g’day and thanks for donations and cash collections.
Mike’s proudest claim is that he didn’t have to get off his bike on a hill once. That included all the ones he knew about and the surprise “bastard” just out of Picton. Fortunately, he can’t remember who scripted the new Tui billboard – “There’s not many hills after Picton”. And he’d just biked off from little Woodbank School – just out of Kaikoura with 4 kiddies, one of whom has CF – when he found seal lying by the roadside. He thought it might have been hit by a car and was taking a closer look when it reared up and he avoided doing a wheelstand as he tore off. The Hundalees would be his next challenge!
The Cycle4CF event will be a highlight of their lives for Mike, Deb and Briar, the whole experience of it.
For the Cystic Fibrosis Association, we’re honoured to have had just a wee keyhole glimpse of the experience and to have benefited from it. But for Mike personally ... in his own words:
“To all the people who have supported me a Huge thankyou. A little thought I had a few days ago as I was coming down the Kaikoura coast, thought to myself that at times I just needed to slow down and enjoy the scenery and all that was around me ... maybe we should live life like that, I think sometimes we’re so busy on the cycle of life that we’re missing the great things around us ... was just a thought. Once again thank you, Mike”.
*Total $11,300 at the time of writing
65 Roses House sells at auction for $131,500!
On March 1st, Napier Mayor Barbara Arnott drove the first nail at the 65 Roses House Build Project at Mitre10 Mega - Napier.
This three-bedroom house was built by Titan Homeswith kind sponsorship from Mitre 10 Mega - supported by the Radio Network and many other businesses and people who donated time and product to ensure that when the house is auctioned by Tremain Real Estate on Sunday April 11, as much of the sale price as possible profited the local Hawkes Bay CF Branch AND the National Share in Life Research Fund.
Our grateful thanks to our amazing supporters of this project.
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