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IMPORTANT NEWS for PWCF attending 2013 CONFERENCEA new Infection Control Policy will apply to the 10th Australasian CF Conference (Conference) for delegates who have Cystic Fibrosis (CF). While the Conference organisers will make every effort to reduce the risk of cross-infection, all persons with CF are discouraged from attending, as this is the most effective way of preventing cross-infection.
In order to limit the risk of cross-infection between persons with CF and allow everyone to participate fully in this important event, Cystic Fibrosis Australia (CFA) and Cystic Fibrosis New Zealand (CFANZ) require all attendees at the Conference to adhere to the precautionary measures outlined in the new Infection Control Policy.
In short, participants with CF will be required to provide a letter from their treating physician stating that to their best knowledge the participant is not a carrier of Burkholderia cepacia nor MRSA, and the participant will be required to sign a waiver in favour of the Conference organsers in the event of a cross-infection incident.
For the full details please refer to the full documents below:
David Lacey does it again, 24 hours on a mountain bike:
"I enjoy getting out on my MTB whenever I can & in particular enjoy long distance endurance events. This is my 3rd time competing in the Cat eye Moonride 24 MTB ride as a solo competitor. (www.moonride.co.nz) Most competitors do this event as teams of 4-6 but every year there’s a few nutters like to go solo.I use this effort as a fundraiser for cystic fibrosis in memory of my sister (Deborah) who passed away in 1992
Every $$ donated is matched $ for $ by my employer BP NZ so please dig deep & support the hard work the association does & get double the bang for your buck
BP values and rewards the energy, enthusiasm and the time employees spend working with schools, charitable organisations and community groups.
The Employee Matching Fund provides grants recognizing employee gifts, volunteer time and participation in sponsored pledge events “
If you’re in Rotorua the weekend of May 17-19 please come along to the Waipa MTB park in support …. Here you will find my long suffering wife & support crew sitting with there feet up enjoying seeing me suffer, nah seriously its probably harder being support crew & having to put up with grumpiness ……
You can support David on his fundraising page http://www.fundraiseonline.co.nz/DavidLaceyMTB/
Press Release: We are so grateful to the voting public for their overwhelming support that means CFANZ has secured Southern Fieldworker, Susan Lovelock a stylish Toyota GX Corolla five door hatch thanks to the kind people at Toyota and their online competition “25 Ways to Say Thanks”.
“People know how hard our Fieldworkers work, they cover big distances to get the job done as they provide services and support in people’s homes and hospitals around the country” says CFANZ CE Kate Russell. “This will makes Susan’s travel a lot safer and more comfortable as she travels from Invercargill to Nelson to liaise with people with Cystic Fibrosis and their families”.
Toyota New Zealand General Manager of Marketing Neeraj Lala says ‘25 Ways to Say Thanks’ was the company’s way of thanking New Zealand for 25 years of market leadership. “It was about recognising and showing our appreciation to customers who have supported us for over 25 years,” Mr Lala says. “We wanted to give them the opportunity to decide who should receive the Corollas for three years, while at the same time increasing the awareness of the amazing
contribution of charities throughout New Zealand, who work hard to make this country a great place to live.”
“It’s so refreshing to see the big companies looking out for the little guys” says Kate. “The South Island Fieldworker has never had a car provided, it just wasn’t within our budget, but thanks to Toyota we’ll be able to deliver South Island Fieldworker services safely, on budget and in style!”
You can check out the great range of Toyota cars by going to http://www.corolla.co.nz/corolla-hatch-range/#/gx
adidas Auckland Marathon GOLDEN entry now available!
CFANZ is one of the charities of choice for the adidas Auckalnd Marathon to be held 3 November 2013.
if you are keen to run the marathon (or half-marathon) and pledge to raise funds for Cystic Fibrosis Association of NZ, then apply for these golden entry tickets. Lots of bonuses, and your efforts help people with CF to breathe a little easier. more
Good in the Hood:
CFANZ is proud to be one of the four groups being supported through Good in the Hood at Z Riccarton. That means we’ll get a share of $4,000 from Z Riccarton - how much depends on how many votes we get!
To vote for us all you need to do is buy something from Z Riccarton during March. You’ll be given an orange token which you can put in the box to vote for us.
We’re also in line for an extra $500 if we’re one of the ten neighbourhood groups nationwide who get the most votes in the online Token Hunt. Just go to z.co.nz/GoodintheHood in March and hunt for tokens to vote for us. You could win some prizes at the same time!
So please head down to Z Riccarton and online to z.co.nz/GoodintheHood during March and vote for us!
24 hour Mountain Bike Ride NON STOP, This man is awesome!
David Lacey continues his generous support for CFANZ by participating again in the 24hr Moonride Moutnain bike race. David's bosses, BP, are equally supportive! They will match donations raised up to the value of $5000USD, so get out there and support David, and we will be doubly rewarded.
David says "I have entered a 24 hour Mountain Bike race in February 2013 as a SOLO competitor ... Yes .... That means I'll be riding my trusty peddly for 24hrs NON stop around a 12km circuit...
I'll do all the hard work; train for and complete this event, but I really need your help to make a difference to the children who suffer from Cystic Fibrosis This is a cause close to my heart as my sister ( Deborah ) passed away from Cystic Fibrosis in 1992
Riding my bike for 24 hours will be a Tough Struggle both mentally & physically but thats nothing compared to the struggle Kids with CF go through every day just to do the simple things that healthy kids do .... "
You can support David at http://www.fundraiseonline.co.nz/DavidLaceyMTB/
Association calls for more legislation for organ transplant, 10 August 2012
Monday the 13th August marks the beginning of Cystic Fibrosis NZ’s "Bubbles Week" when they raise awareness of the condition that affects more than 500 New Zealanders and is the most common of all the world’s rare disorders.
In recent years, with survival rates edging into the mid thirties, the number of people with Cystic Fibrosis on waiting lists for lung transplants is steadily growing and sadly many die whilst they wait for new lungs.
12 April: CF Northland Golf Tournament, contact Mike Webb email@example.com
8 June: Bethlehem Foundation Charity Dinner & Auction, Tauranga, contact firstname.lastname@example.org
17 - 20 August: Australasian CF Conference, http://www.cysticfibrosis.org.au/cfa/conference
14-20 October: Bubbles Week, contact email@example.com
20-22 September: Branch Chairpersons Conference, Wellington, contact firstname.lastname@example.org
1 November: CF Canterbury Golf Tournament, contact Nicky Churton, email@example.com
3 November: Auckland Marathon, contact firstname.lastname@example.org
December: Wellington Christmas Tree Festival, (date to be confirmed) contact Diane email@example.com
The Cystic Fibrosis Association of New Zealand produces a newsy magazine 'CF News', on a quarterly basis.
CF News has articles of interest on a variety of topics such as current CFANZ events, research being undertaken throughout the world, our people in New Zealand and what they are doing, a word or two from our CF Adult Rep and our CEO, as well as snippets from our friends, supporters and sponsors.
Our thanks go to Roche Products (New Zealand) Ltd for their support of CF News, and to Robyn from La Roche design for her continuing efforts in production.
The four most recent editions of CF News are available below:
If you would like to receive a printed copy of CF News please complete the form below, and your details will be added to our mailing list. (New Zealand addresses only please)
This publication is aimed particularly at the adults with CF and is a newsy, chatty edition that raises awareness and issues for discussion.
The editor, Lisa Borkus, is the CF Adult Representative to the CFANZ Board, and in this role she:
- • acts as a conduit between the Board and the adult CF community,
- • raises any concerns and priorities of the adult CF community,
- • and takes part in policy planning on behalf of CF adults.
Lisa has been responsible for the revival of closer friendships and social networking amongst our CF adults, and is a wonderful connector of people and resources.
The four most recent editions are available below:
Branch Chairperson's Conference 2012
September 14-16, Rotorua
2013 Australiasian CF Conference
"Getting Better - Together"
August 17 - 20, 2013
Rendezvous Hotel, Auckland
Lay Conference: Saturday 17/ Sunday 18 August
Medical Conference: Sunday 18 August / Tuesday 20 August
Clippings from the newspapers that involve our people from around New Zealand
- Beating the Odds: DesDustow_Wellingtonian_241111.pdf
- Beaters & Breathers around Taranaki Beaters_Breathers_26Oct11.pdf
- Good cause for chocolate fish: ChocFish_NthShrTms090911.pdf
- A life less ordinary, Jessica Boyd-Rushton: KaikStr_210911.pdf
- Wishes granted: WestLead130911.pdf
- Liam Neil of Hawera: LiamNeilTaranakiStar180811.pdf
- Queen Margaret College help with CF Appeal Week: QueenMargCollDomPost200811.pdf
- Napier's East Pier Gala for CF: EastPierGalaNapierMail170811.pdf
- Bubbles for a cause, Mac Elliot: MacElliotCambEdit170811.pdf
The New Lynn Lions ran a spectacular car event in aid of the CF cause on February 26th, 2012. Galaxy of Cars has been running for many years and this year, they changed venues to Western Springs as the event is now so large it needs extra space. CF ran a bucket collection, had a stall and got a proportion of all entry fees paid by the display cars and the punters coming through the gate.
It was a hot day and everyone had a ball. The total donation from the day was $20,000 WOW! what a tremendous result.
Our sincere thanks to the New Lynn Lions and to the Auckland CF Branch, who provided us with our fabulous volunteers.
Pictured left are the recipient charities of the 2012 Central South Island Charity Bike Ride.
This year's ride raised around $130,000.
Cystic Fibrosis NZ received $6400 and we would like to thank Sharon and her team for their outstanding efforts.
for more information about the bike ride go here
Charity Dinner & Auction
Saturday 8 June.
17-20 August, 2013
Rendezvous Hotel, Auckland
Adidas Auckland Marathon
Please note 'Accounts' are for Branch Executives to have access to management and goverance information.