Cystic Fibrosis is
New Zealand's most common life-threatening inherited condition and the
CF Association is the only national organisation
dedicated to all aspects
of the condition.

Library Books / DVDs 

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» National Conference DVDs

 Some DVDs are now available as Youtube clips.  These clips are 'unlisted' and are only accessible from the link below.  If no link is available, the DVDs are still able to be borrowed from the CFANZ library.

 

Year 2011

Genetic Testing & Counselling - What does it all mean? - Alice Christian

                    http://www.youtube.com/watch?v=uuHm3KzUPqg

Making Physio Fun For Your 5 - 12 year old - Hilaire O'Dea

                http://www.youtube.com/watch?v=TzlzMs00gas

Talking To Your Very Small Child About CF - Viv Isles & Megan Stodhart

                http://www.youtube.com/watch?v=8H1fE1-Ijbo

What I Learned From The USA CF Foundation - Andrea Miller

                http://www.youtube.com/watch?v=G0SWhNGKYEU

Port CF - What Happens Now? - Kate Russell

                    http://www.youtube.com/watch?v=WGK0sO9Tukk

CF Related Diabetes - the lead up, the diagnosis and the future - Dr Paul Hofman

                http://www.youtube.com/watch?v=rSQdwC8kNu4

Depression - How to recognise it and what we can do to help - Linda Karlin

                http://www.youtube.com/watch?v=9IcIpO00mEs

CF At School - What to tell them and working with the teachers - Jan Tate

                http://www.youtube.com/watch?v=Yw2jPgBr_RE

Why Is Her Treatment So Different From Mine? - Dr Cass Byrnes

                http://www.youtube.com/watch?v=m6boVwHJ-Po

Compliance - Turning Negotiation in a Given - Saly Carron, Jane Drumm & Dee Campbell

                    http://www.youtube.com/watch?v=t7aviznPVJM

Caring For Your Sinuses - Dr Campbell Baguley

                http://www.youtube.com/watch?v=et1n0tAhnFY

Inspiration for a Weary Soul - Jason Barrell (DVD only)

My Life - A frank look at life pre and post transplant - Jason Dellow

                    http://www.youtube.com/watch?v=YlcfBFyRmQs

Organ Transplant - Dr Mark O'Carroll, Denise Reddy & Jason Dellow

                    http://www.youtube.com/watch?v=gSv-KHnDufM

 

 

Year 2010

  1. Port CF and the Standards of Care Document - what can we learn from them? - Dr Cass Byrnes
  2. The Role of Patient and Family Advisory Groups - could they work here? - Dr Craig Lapin
  3. Quality Improvement in our Clinics - what's possible? Dr Craig Lapin
  4. Tweens, Teens, Contracts and Non-negotiables - Sue Madge
  5. What Does Great Transition Look Like? - Sue Madge
  6. Red Pill or Blue Pill - unplugging the matrix of parent / teen dependency - Stuart Fleming

Year 2009 

Sexuality and Reproductive Issues in CF - Anna Tsang Research Update on Alginase - Professor Bob Elliott

Annual Assessment for Children with CF - Dr Cass Byrnes

Tripping Around  - travelling with kids with CF - Susan Biggar

My Epic Transplant Journey - Jonathon Fowler

Inhalation therapy and Physiotherapy - Rebecca Scoones

Patient and Family Centred Care - does it matter? - Susan Biggar 

From Active Manager to Coach Mentor - promoting independence in young adults - Dr Mark O'Carroll

When tough stuff happens- Tricia Irving-Hendry

The Bronchealveolar Lavage Study - Dr Cass Byrnes

Medical technology - how does it impact on families of children with CF? - Catherine Lambe

CF - What do teenagers really know?- Jan Tate

Practical Management of CFRD- Anna Tsang

Antibiotics - is overuse a problem in CF?- Dr Mark O' Carroll Infection Control - protecting your kids without going over the top - Panel Discussion

 

 

  

 Year 2008

Mucous, Microbes and Mysteries Part One - Pseudomonas Aeruginosa  

Mucous, Microbes and Mysteries Part two - Other Bugs  

Barriers to treatment Adherence and Strategies to improve it  

Building Sibling Resilience   Purple Soup  

CF doesn't come with an instruction manual  

How to I get them to eat without ruining dinner? Part One - Dr  Lori Stark  

How do I get them to eat without ruining dinner? Part Two - Dr Lori Stark

Pegs, Ports and Piccs  

Promoting Dietary Adherence for Children with CF - Dr Lori Stark  

10 So you dont think physio is important?  

11 So you have CF and want a baby? Where to from here?

12 The value of play therapy

13 Optimising your health at work and at play  

   

 

If you would like to borrow an item from the CFANZ library please contact Susan Lovelock (Southern Fieldworker & CFANZ Librarian) on susan@cfnz.org.nz

Items are available on loan from the Association's National Office for 4 weeks.

  

                                                                        

 

 

 

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