Library Downloads  

• Travel

• Treatments and CF related Disorders

• Care in New Zealand

• CFANZ Annual Reports

• Other

A Guide for Adults with CF

CFANZ    

Discussing topics such as your

physical and emotional well-being

and lifestyle choices, education,

travel and employment

Cystic Fibrosis and 

Relationships  - a collection of real life experiences

Written by people with CF and

their partners

Discusses relationships, starting a family, and later stages of CF

Higher Education

CF Trust, UK

Designed for adults intending to go onto tertiary education

Cystic Fibrosis in the Workplace

Transition - A Guide for Parents

CF Trust, UK

Answering some of the questions raised by parents when their child is ready to transitions to Adult Clinic

 A Guide for children with CF,

aged 8 - 12 years  

CF Trust, UK

Answers general questions about CF at a level of 8-12 year olds

A Guide for Young People with CF, aged 12-18 years

CF Trust, UK

Discusses CF in relation to teen years, puberty, and socialising.

Supporting Children with CF

CFANZ

A guide for teachers, schools and early childhood centres

School and Cystic Fibrosis

CF Trust, UK

A guide for teachers and parents

My Mummy has CF

CF Trust, UK

Children's book aimed a 3-6 years old, helping young children  to understand why Mummy isn't well

Transition - A Guide for Young People moving from paediatric

to adult care

CF Trust, UK

Answering some of the questions of the teenager preparing to transfer to Adult Clinic

Day to Day Exercise and Cystic Fibrosis

CF Foundation, USA

Discusses the role of exercise in the treatment of CF

Exercise and Cystic Fibrosis

CF Trust, UK

Answering questions about exercise and cystic fibrosis

CFANZ Infection Control Policy

CFANZ

Excerpt from the CFANZ Policy Document

What You Should Know About Germs

Infection Control & Hygiene Guide

CFANZ

General hygiene guidelines for people with CF

Stopping the Spread of Germs

CF Foundation, USA

Information on infection control procedures for people with CF and their families

Finding Out

CF Trust, UK

A guide for parents of newly diagnosed children with Cystic Fibrosis

Genetics of Cystic Fibrosis

A Layperson's Guide

CFANZ

an explanation of genetic inheritance of the CF gene

Cystic Fibrosis Information Guide

CFANZ

Information about CF and the New Zealand Association

Supporting Family or Friends who receive a diagnosis of Cystic Fibrosis

CFANZ

Information on ways in which you can offer support to those who have received a new diagnosis of CF in the family

The Sweat Test

CF Trust, UK

What is it and how is it performed?

Genetics

CF Trust, UK

Genetics, Carrier Testing, Tests during Pregnancy and for Newborn Babies

Cystic Fibrosis Late Diagnosis Guide

CFANZ

Information for those diagnosed with CF in adolescence or adulthood

Nutrition - Infants with CF

CF Trust, UK

A guide for feeding infants who have CF

A Guide to Giving Pancreatic Enzymes

Auckland DHB

For the infant with Cystic Fibrosis

Eating Well with Cystic Fibrosis

CF Trust, UK

A guide for children and parents

Eating Well with CF- A Guide for Adults

CF Trust, UK

How to Encourage Healthy Eating

CF Foundation, USA

Providing pointers to relieve anxiety about eating behaviours

Pancreatic Enzyme Replacement

CF Foundation, USA

Nutrition Changes Through Life

CF Foundation, USA

A guide to how nutrition needs change throughout the stages of your life

Grab 'n Go!

CF Foundation, USA

Meal and snack ideas for people with CF on the run

Colour Your Calories

CF Foundation, USA

Adding antioxidants to your high-calorie CF diet

Travel Guide for People with Cystic Fibrosis

CFANZ

a guide to assist you, your family and travel advisers

Melioidosis and Travel to Tropical Countries

CF Trust, UK

Information about melioidosis, an infection risk to people with CF travelling to certain tropical countries

Physiotherapy - For Babies & Toddlers with CF

CF Trust, UK

Information about why, when and how to do physiotherapy on babies and toddlers

Physiotherapy - Airway Clearance Techniques

CF Trust, UK

Discussion about various airway clearance techniques

Physiotherapy - Urinary Incontinence

CF Trust, UK

What is it and what can you do to improve it?

Home Intravenous Therapy

CF Trust

Advice for patients, parents and carers

The Use of Ports in Cystic Fibrosis  (Totally Implantable Venous Access Devices)

CF Trust

Information for patients, parents and carers

Nebuliser Therapy

CF Trust, UK

Information about the types of nebulisers, maintenance and the types of medications used

Steroid Treatments in Cystic Fibrosis

CF Trust, UK

Discussion about the use of steroids in the treatment of CF, and methods of delivery

Cystic Fibrosis and Bone Health

CF Trust, UK

Describes how bone health is affect by CF and the implications

Cystic Fibrosis Related Diabetes

CF Trust

Provides answers to frequently asked questions about CF related diabetes

Transplantation

CF Trust

Information about lung transplantation for patients with Cystic Fibrosis

Standards of Care for Cystic Fibrosis in New Zealand

CFANZ - Medical Advisory Committee

Port CFNZ - Cystic Fibrosis Data Registry

Cystic Fibrosis Association of New Zealand 

Annual Reort 2010

CFANZ 

Information for Volunteers

Leaving a Legacy