Information Service
The following are available on loan from the Association's National Office for 4 weeks:
» Stories of Life Experiences - Books
Blow the house down, the story of my double lung transplant
Courage
Nicola (four copies)
Silent fighters
The Meaning of My Life
The Spirit of Lo, a family's journey
Little Brave Ones - A photo tribute to little ones with CF
Inner Strength - One family's journey with CF
Alex - Life of a Child - Frank Deford
» Practical Guide For CF - Videos
A CF Life, college and career choices for CF Adults
Beating CF 1990
Here Tomorrow
Living with the challenge of CF
On the Move - CF Foundation (two copies)
The sickness & Invalids Benefits strategy
The Will to live, Meeting the Adult challenges of CF
Today's Physiotherapy for CF
Understanding CF
Grief and the Family
Speaking from Experience - Adults
Speaking from Experience - Adolescence
Speaking form Experience - Newly Diagnosed
A/C and the Awesome E's
» Practical guides on Cystic Fibrosis - Books
Bereavement, help for the family who have lost a child to CF - Dr Janet Goddall
CF & You, Dietary & Physiotherapy
CF Guide for Parents
CF issue 4 edition 1 2004
CF The Facts- Harris & Super (two copies)
CF worldwide newsletter (four copies)
Cystic Fibrosis - Pharmaco
Escape the Pain - Oliver Gillie
Going to hospital for young children - CDHB
Good if not great living with lung disease - Phil Petersen
Helping the Hurt, how to understand & help grieving children and teenagers - Lois Tonkin
Meeting special education needs at school - Special Education Resources
Nutritional Management of CF - D.Stableforth
Nutrition for the Adult with CF - Macdonald/Littlewood
Nutritional Management - CF Trust
Pathfinder He Aratohu - Special needs book
South Island Youth service directory 2004
Starting Young - Lois Tonkin
The Importance of clear sexual boundaries in Patient/Doctor relationships
The Physical Treatment of CF - Royal Brompton Hospital UK
What they don't tell you, a young persons guide to sexual & reproductive health issues - Roche
Growing Older with CF
CF Guide for Patients and Family
After your child has Died
Growing Up with CF
International CF Directory
Fat and Loving it - practical guide to nutrition with recipes
Charity and Legal Gazette
Supporting Families with CF - Family and Social Functioning
Directory of Genetics Support Groups - Australasia
In the Shadow of Illness - A book for Parents and Siblings of a Chronically Ill Child
Oh Brother - Growing up with a special needs sibling - Natalie Hale
Managing Chronic Illness - Reclaim Health and Wellbeing - Vernonica Latham
» Life Stories - videos
65 Roses for L J Hooker
AC & the awesome E's
Alex, life of a CF child
Charlotte Hayes What Now
Inside Out featuring Paul O'Harroran
Speaking from experience, adults with CF - three copies
Wolverines message and 65 Roses
Medical Information on CF - books
Breakthrough - Harry Schwartz
CF A guide for Patient and Family second edition - DM Orenstia
Fertility, Pregnancy & Conception in CF - CF Research
Health Fact 2000 _ Research Medicines Ind
Heart/Lung transplants for Patients with CF - 1990
Prenatal Diagnosis -NSW Genetics
Respiratory Care - BA Webber
Royal Commission of Genetic Modification (1) (two copies)
Royal Commission on Genetic Modification (2)
RMI Health facts 2000
CF Data Registries 1999 - 2002
Genetics UK Trust
CF Physiotherapy - UK Trust
Nutrition - UK Trust
Review of Regulation of Human Tissue therapies
Antibiotic Treatment in Cf - UK Trust
Standards of Care - UK Trust
Burkholderia Cepacia - UK Trust
Nutritional Management in CF - UK Trust
Molecular Epidemiology of CF
Recombinant human deoxyribonuclease for CF
Cozmore Insulin Pumps - Smiths Medical
Living with Diabetes and Insulin - Diabetes NZ Handbook
Cystic Fibrosis - the Facts - Ann Harris and Maurice Super
Psychosocila Aspects of Cystic Fibrosis - Myra Bluebond-Langner et al
» Medical - videos
Aerosols & the RH-Dnase Study
CF 50 years of progress
CF Genetics - Frontline
Dr James Littlewood - Speaking at Eden Park 07/04/98
On the road to a cure - CF USA Sept 1994
One in twenty
One step closer, Pulmozyme - Roche NZ
Prenatal Diagnosis, towards making an informed decision - New Genetics education programme
Research on CF - Child health research foundation
Stem Cell Research & its implications for CF - by Dr Richard Mollard
The Gene Race - Horizon
Cure Kids - Research
Frontline - 1990 CF Genetics
» Cystic Fibrosis Tape Library List - videos various
CF Awareness Promotion
Dennis Warmington CF Interview
Doctor J Littlewood & Wendy Calnan CF
Lucia Loy - The whole truth
Variety hour 24/05/88 - J & R Stewart
William Northcoat May 2000
» Cystic Fibrosis CD Library List
65 Roses - Wolverines
CF 2003 Trans Atlantic Rowing race
CF Baltimore, Maryland Nov 9-12 2000 - Highlights
CFANZ 03/04 Donations 1001-2025
CFANZ 2004 receipts 2016-2116 & 2117-2241
CMG Cricket 27/01/02
Report of the Royal Commission on Genetic Modification
The Official Crusaders Theme
The Ultimate Garage Sale 2001
» National Conference Video Tapes
Year 2000 | |
| Tape 1 | Aspirations: Fertility options; Transition from Paediatric to Respiratory: Lung Transplant |
| Tape 2 | Coping with and supporting: More aspirations: New Research strategies: Molecular Genetics |
| Tape 3 | CF sheep and research on Pseudomonas; Infection control: New Creon; Treatment of chest infections |
Year 2001 | |
| Tape 1 | Travel with CF: Use of Pulmozyme in NZ infection control; my life with new lungs-2 years on |
| Tape 2 | Fertility issues; genetic counselling |
| Tape 3 | Burkholderia Cepacia; Exercise: Bronchoscopy; Asthma and CF |
Year 2002 | |
| Tape 1 | The benefits of exercise ; My role with Cfers and the Transplant team; Second wind by S Ashby; CFRD; CARD - The Greenland experience by L Thrift |
| Tape 2 | New developments in correcting/compensating for the basic defect in CFt; Exercise testing in CF,; Parenting with CF - Dealing with chronic sorrow ; Association support for people with CF |
| Tape 3 | Airway inflammation; Is chlorine bleach produced in the lungs of CF children?; The impact on CF siblings:The Australasian CF registry; Liver disease in CF |
Year 2003 | |
| Tape 1 | Rights and responsibilities; reproduction and pregnancy cf fertility treatment panel; art of having a positive attitude |
| Tape 2 | Are you getting all you deserve; a different approach to well-being growth hormone and insulin therapy; white blood cells and cf |
| Tape 3 | Quality of life issues; young people with CF; Myths and Morals and the moratorium; potential risks of GM technology SLPI and Elafin |
| Tape 4 | My experience with Reiki; Aussie Cf registry; Ask the team; genetic testing for CF |
Year 2004 | |
| Tape 1 | Role of nutrition in lung transplant; idea of a transplant |
| Tape 2 | what I hate about cf and how I overcame it; accomplish Supported Employment |
| Tape 3 | Role of Parents in Cf Adult care; Early Intervention; PGD |
| Tape 4 | How Siblings cope with Cf; Strong Parents Strong Children; Azythromycin |
| Tape 5 | Pegs,ports and pics; Hospital in the Home; Potatoes, Prunes and Garlic- keeping well; issues facing the Cf community today |
Year 2005 (also available in DVD) | |
| Tape 1 | |
| Tape 2 | |
| Tape 3 | |
| Tape 4 | |
» Other Conference Tapes and Presentations
Denis Warminton 1999
» Promotional Items and Governance Resources
Wolverines Video
65 Roses for LJH
TVNZ Inside Out featuring Paul O'Halloran
Evaluating and Monitoring your projects
Employment Agreements for Community Groups
Working in Groups
Conflict Management
Governance and Management
CFANZ Brochure - Cystic Fibrosis - an Explanation
CFANZ Brochure - The Cystic Fibrosis Association
CFANZ Brochure - Hygiene Guidelines
CFANZ Brochure - Teachers Guide to Supporting students with CF
CFANZ Brochure - Adult Guide
CFANZ Booklet - Parent Guide
Back issues of the CF News are also available from the National Office.
