Grants and Awards
Living with Cystic Fibrosis is hard, but despite their struggles people with CF achieve many things. There are times however, when they can do with a helping hand. We are here to help make life just a little bit easier with a range of awards and grants. You will find details of each award or grant on this page along with details on how to apply for it. This assistance has been made possible only by the generous donations and endowments from individuals and businesses alike.
Breath4CF Physical Activity | Education Grants | Welfare Grants |
Chris Howlett Endowment | Creon 'CF Achievers' Awards | Allied Health Education |
»Breath4CF Physical Activity
The Breath4CF Physical Activity grant is an allowance for people with Cystic Fibrosis, to assist them so that cost is not a barrier to physical exercise. Medical advice is unanimous, exercise is a way that people with CF can affect their own quality of life and longevity.
Breath4CF allowances are graduated for age:
Child 0 - 5 years $150 All Others (6 years +) $300 These rates have been reviewed by the CFANZ Board and have been reduced in light of lower than expected returns on fundraising for the past two-three years. These rates take effect on 1 August 2011, and applications recevied before 27 July 2011 will be processed at current allowance rates.
To qualify for this allowance people with Cystic Fibrosis must be registered with the National Office, but need not be symptomatic.
Most sports and activities are covered by the allowance, but in general the activity must: increase breathing rate, increase heart rate and / or increase movement of chest and upper body. Some 'grey' areas exist and any activities that fall into these 'grey' areas are referred to a Cystic Fibrosis Physiotherapist for a final decision as the activity's benefit.
For more details regarding those activities specifically excluded, please refer to the application form, which can be downloaded from our Forms page.
IMPORTANT - please remember to include receipts, invoices or quotes with your application as we cannot process it without them.
If you have any questions, email julie@cfnz.org.nz
»Education Grants
» Tertiary Study Assistance Grants
February 2011: Tertiary Study Assistance Grants have been reviewed and some changes have been put in place to ensure maximum benefit is achieved for the recipients from the funds paid by the Association.
Grant Conditions:
1. To qualify you must meet the following criteria:
2. Those who meet the above criteria qualify for a grant maximum of $5000 (maximum value claimable for each year of study 50% of tuition fees and course costs, up to $2500 maximum)
3. For those students who have a Studylink Student Loan - if there are extra costs, not included in the Studylink loan, students may apply for grant money to pay for up to 50% of the extra costs.
Any balance remaining at the end of the period of study will be available to the applicant once they are in a position where Student Loan repayment is compulsory. A lump sum payment of the balance will then be paid directly to their Student Loan. This qualifies as a 'voluntary repayment' and earns a 10% repayment bonus from Inland Revenue.
4. For those students not eligible or who choose not to have a Studylink Loan, the maximum value claimable each year is 50% of tuition fees and course costs, up to a limit of $2500, and will be payable directly to the course provider.
5. There is no maximum time-frame for study completion.
6. Grant are prospective and must be for the current year's study. Retrospective application for previous years will not be accepted
For more details regarding Tertiary Study Assistance, please read the Tertiary Study Assistance brochure available on our Documents & Forms page.
» Jono Fowler Memorial Scholarship
In 2010, the Public Trust donated $10,000 in memory of Jono Fowler, and it is the wish of Jono‘s family that these funds be used to foster "connectedness" within the Adult CF community, as Jono‘s work and leadership had done.
This scholarship will provide for two CF adults per annum to attend the National Conference, to a value of $300 each toward travel and accommodation, over and above the normal waiver of registration fees.
Applications open each year, three months prior to the CF Association National Conference. Check conference dates on our News & Events page.
Applications for the Scholarship are to be made on the Jono Fowler Scholarship Form available from our Forms page
» Mark Ashford Memorial Scholarship
The Mark Ashford Memorial Scholarship is the premier study award, a grant of $3000 to the recipient.
All applicants for Tertiary Study Grants in the past year, are considered for the scholarship. As well as external applications from young people with CF who are currently studying, but not receiving a CFANZ Tertiary Study Grant.
Applications for the Scholarship are to be made on the Mark Ashford Scholarship Form available from our Documents & Forms page
This award is funded by Fletcher Group through DVS, the successor to the Fletcher Challenge company where Mark worked as a valued employee for 7 years. The recipient will be selected from all grant applicants and will be chosen by Mrs Kathryn Ashford, the General Manager of Duroid Limited and the Administration Manager of the Cystic Fibrosis Association of New Zealand.
»Welfare Grants
» Hospital Allowance:
A $20 per day allowance towards costs is available to all CF patients on transfer from their base hospital, or when admitted to a hospital more than 100 kilometres from their current residence. This is available for a maximum of 28 days per admission, except in the case where a transplant has been carried out, when a 90 day maximum will apply. Application to the National Office should be made by the CF patient or their caregiver on the application form available from the National Office, the local Branch of the Association, the CF specialist nurse/charge nurse at the hospital, or it can be downloaded here. Go to our Documents & Forms page
The following four areas of assistance need to be applied for in writing, with relevant information and receipts provided, once available. However, if you prefer, initial enquiries/contact can be made by phone to the National Office.
» Funeral Expenses Grant:
A grant of $1,000.00 is available to assist with the costs of the funeral of a person with cystic fibrosis, resident in NZ. This is available to the parent, caregiver or spouse/partner on application to the Association.
» Open Transplant Assistance:
Available to the parent, caregiver or spouse/partner of a CF patient undergoing open transplant, and covers reimbursement of approved travel, accommodation, and other expenses.
» Financial Hardship:
Available to a CF adult, parent or caregiver where major financial hardship is established.
» Assistance from Branches
Other welfare needs can often be met by the local branches of the Association, as they have funds set aside specifically for use in their areas. Please contact the branch serving your area.
»Chris Howlett Endowment
The Chris Howlett endowment fund provides for a once only cash payment to 18 year olds with Cystic Fibrosis.
The endowment fund was made possible by the Chris Howlett Trust which was established in 1991 to fund the medical and quality of life needs of 14 year old Chris Howlett, of Whangarei, New Zealand. Chris and his family moved to London expecting that he would undergo a lifesaving triple organ transplant, but removal of an enlarged spleen brought a dramatic improvement and the transplants were not required. Sadly, Chris died 5 years later, in July 1996, age 19 years.
The CFANZ Board investigated ways of benefiting future young adults with CF, and decided to establish the Chris Howlett Endowment Fund. The fund is managed with the aim of preserving the value of the capital sum, and making cash payments from the interest to people with CF on turning 18 years of age.
In 1998 the fund started by making a payment of $500 to those people with CF who were already 18 or who turned 18 between 1 March 1998 and 28 February 1999. During the last few years, this amount has increased, so that it now stands at $1700 for those turning 18. There will be no strings attached as far as what the money is used for. It is intended to be a "helping hand" for the recipient.
To qualify for the grant, people with Cystic Fibrosis should register with the Association prior to their 18th birthday, so that payments can be made at the appropriate time. As their eligibility will cease on their 19th birthday, they must have their application into the Association before that time.
To qualify for a grant you must:
- Have symptomatic Cystic Fibrosis
- Be a New Zealand resident
- be 18 years of age
- Register with the Association's National Office
Key points about the Endowment Fund are:
- People may register with the Association before turning 18, but may register any time before their 19th birthday, at which date their eligibility will cease.
- The Chris Howlett Endowment Fund money is maintained in a Managed Fund with the aim of maximising the investment return consistent with security of investment. The level of payment made each year will be decided by the Association's Board, taking into account the need to preserve the value of the capital sum, the number of payments projected to be made, and the available funds.
IMPORTANT NOTICE
21 Nov 2011: The age of eligibility for the Chris Howlett Endowment has been changed to 21 years. This change will come into effect on 1 July 2012. Anyone turning 18 years old prior to that date is still eligible under the existing rules, after that time any pre-registrations will be held until the applicants reach 21 years of age.
How to Register:
You can register by completing the Chris Howlett Registration Form and mailing it to our National Office.
Find the form on our Documents & Forms page.
»Creon "CF Achievers" Awards
The Creon 'CF Achiever" Awards are sponsored by Boehringer Ingelheim, distributors of Creon products.
The awards are made annually to persons with Cystic Fibrosis as recognition of their optimism, perseverance and achievement in a wide range of endeavours.
Anyone with CF, resident in New Zealand, is eligible to apply or be nominated for an award.
Applications close 1 March each year, and the award categories are:
- Leadership
- Arts
- Sports
- Education
Awards will be between $500 and $2500 at the discretion of the Board of Reference.
The recipient of an award is ineligible for further awards in the same category, but may apply for an award in a different category after a period of two years. CF Achiever Award application forms are available from the National Office or your local branch.
They can also be downloaded from our Documents & Forms page
»Allied Health Education Grants
To promote appropriate learning opportunities for CF Allied Health professionals, the Cystic Fibrosis Association provides assistance in the form of the Allied Health Education Grant.
Page TopThere will be two rounds of applications each year (30 June & 31 December). Each round will have maximum pool of $2500, to contribute to learning opportunities within the following six months. Individual grants will not exceed $500.
Application forms are available from our Documents & Forms page.
All applicants will be notified within two weeks of the current round closing.
January 2011: Cathay Pacific Travel Award
Congratulations to CF Nurse Specialist Robyn Beach from Christchurch who has been successful in winning the Cathay Pacific Travel Scholarship.
Robyn will attend the 2011 CF European COnference in Hamburg in June and when she gets back she will be sharing the new knowledge she gains with others through CF News and conference.
Our sincere gratitude to Cathay Pacific for making this very generous award available to the Cystic Fibrosis Association of NZ.
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