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  cloudy1576 (16-03-2011)

• http://www.greenmedinfo.com/page/dark-side-wheat-new-perspectives-celiac-disease-wheat-intolerance-sayer-ji
  
  In a nutshell, what we eat and what we are exposed to in our environment directly affects our DNA and its expression.
  Within the scope of this new perspective even classical monogenic diseases like Cystic Fibrosis (CF) can be viewed in a new, more promising light. In CF many of the adverse changes that result from the defective expression of the Cystic Fibrosis Transmembrane Conductance Regulator (CFTR) gene may be preventable or reversible, owing to the fact that the misfolding of the CFTR gene product has been shown to undergo partial or full correction (in the rodent model) when exposed to phytochemicals found in turmeric, cayenne, and soybean Moreover, nutritional deficiencies of seleniun, zinc, riboflavin, vitamin e, etc. in the womb or early in life, may “trigger” the faulty expression or folding patterns of the CFTR gene in Cystic Fibrosis which might otherwise have avoided epigenetic activation. This would explain why it is possible to live into one’s late seventies with this condition, as was the case for Katherine Shores (1925-2004). The implications of these findings are rather extraordinary: epigenetic and not genetic factors are primary in determining disease outcome. Even if we exclude the possibility of reversing certain monogenic diseases, the basic lesson from the post-Genomic era is that we can’t blame our DNA for causing disease. Rather, it may have more to do with what we choose to expose our DNA to.
  

  Honora Renwick (25-08-2010)

• Hi there, we are a mother and daughter team from South Auckland - our brand new grandson (and nephew)has just been diagnosed with cf, wondering if there are any familiies in the Franklin area that meet up to share support and company - if so, we would love to hear from you as we are newbies at the start of a long road :) pauladee@xtra.co.nz

  Paula Burgess (10-07-2010)

• Hi All,
  Juat thought I would swing in and say Hello. I live in the UK, moved here with my family from NZ in 1991. My Brother Chris Howlett)had CF, sadly he died in July 1996. yesterday was his anniversary.
  I too have CF and am now 25 living life to the full in Manchester. Thinking about returning home in the future, but got heaps to do here first.
  Would love to hear from anyone else who has to deal with Cf in their life but particularly anyone who has recieved the Chris Howlett Endowment Fund as it was his wish that through his expereince he could help others.
  You can contact me at: Littlemissjohowlett@gmail.com

  Jo Howlett (06-07-2010)

• Hi Everyone, I've just found out I'm expecting my first baby and have a niece with CF. I'm interested in using the cord bank for my baby but have not known anyone else who has done this. I understand that this could be very benificial should my child be diagnosed with CF too. Does anyone have any information about this or know should my baby not need it can my niece use this? So sorry if this is a silly question but would love advice from anyone who has investigated this option especially given the expence involved.

  Amanda Cuff (12-04-2010)

• Hi there
  Myself and family are looking at moving to New Zealand from Scotland, we have just returned from a holiday there to see if we liked it and needless to say we loved it! Now the work begins looking at all the practicalities and the main thing on my mind is my daughter who is one and has CF. I would be interested to hear about the care of children with CF in New Zealand, in particular anyone from the UK who has made the move and how you find CF care in New Zealand compared to the UK.
  
  I am very grateful for any information anyone can provide,
  
  thanks - Cara email: carablunn@btinternet.com

  Cara (12-04-2010)

• Hi everyone, my name is Fiona Zidan and I have a friend who has a boy who had only 37% lung capacity due to CF. He has used my Air filtration unit for the past 9 months and now at the age of 15 has increased his lung capacity to 56%. Plus he had a lot less colds and illneses as my light to move around air treament system actually kills off Pseudomonas Aeruginosa. Pls email if you like full information, f.zidan@bigpond.net.au. p,s, it is available on interest free ,money back guarantee satisfaction, loans.

  Fiona Zidan (26-03-2010)

• Hey everyone!
  I'm Cavan and I've got CF. I'm backpacking around the world starting in less than two weeks. I will be heading to NZ at the end of August. I may have an issue with restocking my medication when I get to NZ (may have to be shipped from UK). Has anyone done this before? As I can't carry 10 months supply with me!!
  
  My email is cavanarrowsmith@googlemail.com and travel blog is www.cavanarrowsmith.co.uk

  Cavan Arrowsmith (14-02-2010)

• Hi, my name is Trudy and I am 35 years old, I've got CF and had a double lung transplant 12 years ago. I am doing great and absolutely loving every minute life gives me. If any body wants to ask questions of someone who has got CF and has had a transplant I am more than happy to chat and answer questions, no question is a stupid question. I can be reached on email trudes2898@yahoo.co.nz

  Trudy Hannan (02-02-2010)

• hi all.i have a 2yr old boy Austin who has cf and would like to hear from anyone around my district of Levin that have any children around his age.mainly to help with some ideas around eating as we have just spent 1 week in Palmerston North hospital with a suffecent amount of weight loss for my young man.any ideas from anyone would be greatly appreciated.
  my email address is austyburger@hotmail.com
  Thanks Linda
  

  Linda Seng (30-01-2010)

• To Kate Thanks for letting me know that, tell him i said hi if you talk to him and wish him all the best. He'd 2 lovely children. Angela x

  Angela (30-01-2010)

• Angela - Paul is fit and well and enjoying life with his new lungs!
  Regards Kate Russell, CEO

  Kate (29-01-2010)

• Hi Jo - the contact for the Auckland Branch is Helen Geary 09 636 0351 - give her a call and she will put you in touch with other Mums in your area

  Kate Russell - CEO (29-01-2010)

• Hi there was just reading your message board, as i was watching a television programme 2 nights ago, about a man of 43 who had a lung transplant, he had cystic fibrosis(cf). I was just wondering if anyone knew how he was doing i can't remember his 2nd name his first name was Paul and he was from New Zealand. Thank you.
  
  I also have cf i am 45 years of age in April (this year 2010), i am also diabetic i keep very well on the whole!. I live in Belfast, Northern Ireland.
  
  Thanks a lot for your help if anyone knows who im talking about much appreciated.
  
  Angela

  Angela (29-01-2010)

• Hi, my name is Jo Ringer. Myself and my family have just moved to Auckland from the UK. Our little boy Jack has CF, he is eight. We also have twin daughters Kate and Ellen, they are twelve(they don't have CF). It would be nice to meet some other CF mums in the North Shore area.
  So far everyone in the CF team at Starship have been fantastic and really made us welcome. Thank you!

  Joanne Ringer (09-01-2010)