Web Links
The following is by no means exhaustive; it is purely a list of sites on various topics that you might find useful, even if only as a place to start. Many of them have their own 'links page', referring you to yet more sites on particular subjects - Happy surfing!
- www.breath4cf.co.nz
Ironman New Zealand Fundraising for CF. - www.fundraiseonline.co.nz
Fundraising portal for online donations to Breath4CF. - www.carers.net.nz
A fantastic resource for all carers of people with personal health needs. - www.cfri.org
Website of CF Research Incorporated; has some good articles in the newsletters online. - www.mycysticfibrosis.com
Designed to help with living everyday with CF; has a personal interactive diary for recording your own info, and you can ask questions of various medical experts. - www.healingwell.com/library/cysticfibrosis
Has an excellent description of CF, treatments, and the outlook for the future, as well as articles of general interest. - www.cfww.org
The amalgamated International Assoc. of CF Adults and the International CF (Mucoviscidosis) Assn; has various articles and a very good newsletter online. - www.kidshealth.org
An excellent site on all aspects of health, including sections for kids, teens, and parents. - www.cftrust.org.uk
Has particularly good sections on latest research and nutrition. - www.cystic-l.org
CF information & support; the 'handbook' contains very comprehensive info on all aspects of CF. - www.cysticfibrosis.co.uk
Solvay hosted website on the latest happenings in the CF world. - www.curekids.org.nz
The site of the Child Health Research Foundation; has general articles and research news, and contains the application form for CF Research funds available from the CF Association of New Zealand. - www.cysticfibrosis.ca
The section 'designed for persons with CF' is excellent. - www.intelihealth.com
Has some really sound advice and information on complementary and alternative medicine. - www.cff.org
Great for information on latest research. - www.bravekids.org
For children with a chronic illness. - www.cysticfibrosisqld.org.au
Has a very good section on CF in school. - www.bmj.com
Site of the British Medical Journal, where you can access a multitude of articles on CF - just use the search facility. - www.osteoporosis.ca
All about osteoporosis, and contains a 'calcium calculator' with which you can check if you're getting enough calcium. - www.pseudomonas.com
About the Pseudomonas Genome Project. - www.cfv.org.au
Interesting newsletters for adults with CF available online; also has a chatroom operating at least two evenings a week. - www.carers.net.nz
A great site with advice and info for all those who look after a person with a disability. - www.newscientist.com
Latest developments in CF research; use the search facility. - www.2ndwind.org
A site from a lung transplantee support group; the member's stories are good, as are the information sheets. - www.liv.ac.uk/cfgd
Website of the Cochrane Collaboration CF Review Group; 'helping people make well-informed decisions about healthcare by preparing, maintaining & promoting the accessibility of systematic reviews of the effects of healthcare interventions.' - www3.nbnet.nb.ca/normap/CF.htm
Personal site of a mother with CF, consisting of well over 1000 links to all sorts of CF topics, updated regularly.
- www.parent2parent.org.nz
Parent to Parent NZ is an information and support network for parents of children with special needs ranging from the very common to the most rare conditions - www.healthpoint.co.nz
A great source of information regarding health services for respiratory conditions. - www.atmcoalition.org.nz
A coalition of not for profits working together for better access to medications for all New Zealanders.
If you find another site that is particularly useful, and you feel it should be on this list, please contact Kate Russell on 0800 651122 or email kate@cfnz.org.nz
