The Chris Howlett Endowment Fund
The endowment fund was made possible by the Chris Howlett Trust which was established in 1991 to fund the medical and quality of life needs of 14 year old Chris Howlett, of Whangarei, New Zealand. Chris and his family moved to London expecting that he would undergo a lifesaving triple organ transplant, but removal of an enlarged spleen brought a dramatic improvement and the transplants were not required. Sadly, Chris died 5 years later, in July 1996, age 19 years. The proceeds of the Chris Howlett Trust have been paid progressively to the Cystic Fibrosis Association of New Zealand, and now total approximately $450,000.
The Board investigated ways of benefiting future young adults with CF, and decided to establish the Chris Howlett Endowment Fund. The fund is managed with the aim of preserving the value of the capital sum, and making cash payments from the interest to people with CF on turning 18 years of age.
In 1998 the fund started by making a payment of $500 to those CFers who were already 18 or who turned 18 between 1 March 1998 and 28 February 1999. During the last few years, this amount has increased by $200 per year, so that it now stands at $2000 for those turning 18 during the year ending 28 February 2006. There will be no strings attached as far as what the money is used for. It is intended to be a "helping hand" for the recipient.
To qualify for the grant, people with Cystic Fibrosis should register with the Association prior to their 18th birthday, so that payments can be made at the appropriate time. As their eligibility will cease on their 19th birthday, they must have their application into the Association before that time.
To qualify for a grant you must:
- Have Cystic Fibrosis
- Be a New Zealand resident
- Register with the Association's National Office to receive the benefit currently payable.
Key points about the Endowment Fund are:
- People should register with the Association before turning 18, but may register any time before their 19th birthday, at which date their eligibility will cease.
- The Chris Howlett Endowment Fund money is being managed by Spicers Financial Services with the aim of maximising the investment return consistent with security of investment. The level of payment made each year will be decided by the Association's board, taking into account the need to preserve the value of the capital sum, the number of payments projected to be made, and the available funds.
How to Register:
Send a signed letter to the Administration and Support Manager, Cystic Fibrosis Association of NZ, P.O.Box 8241, Christchurch, NZ stating that you have Cystic Fibrosis and wish to register for the once only payment. Include your full name, address and date of birth. Alternatively, you can use the registration form which appears from time to time in the CF News.
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